Health Organization for Pudendal Education

Raquel, I sympathize with you and your symptoms. I have a young daughter and it is very hard to care for her. I have to have help every day. I do not have the numbness you speak of, just pain. You will find on this website a list of the many doctors worldwide who treat PNE. There aren't hundreds, bu...

HM,

The world is not fair. YOU SHOULD NOT HAVE SHINGLES!!! YOU POOR THING!!! ARGGGGH.... i am praying for you.

Hey, while i'm at it... should i ditch lyrica and go back to neurontin? lyrica almost caused me to crash my car, vision blurred, sever side effects....

A's M

nYT,

How are you doing from your surgery w/ Dr. Hibner??? Do you still have the pain pump in place???

Best,

A's Mommy

Jane, welcome to HOPE. I am a patient of Dr. Hibner's in Phoenix, AZ. I live in Pennsylvania, though. I am so curious as to the UK terms of doctors: 1) What is a Dr. (such as Dr. Baranowski) 2) What is a Mr. (such as Mr. Wong) 3) What is a Professor (such as Professor Carlstedt) I guess I just don't...

NervyJoe! You made it!!! You are PNE- free!!! And the pain pump is bliss!!! Enjoy the numb butt cheek while you can! I can't believe you have a bm that fast... whatever you do, DO NOT GET DESPERATE AND TAKE MAG-CITRATE! (Story from hell from me post-surgery....I was so desperate to poo....yeah.... b...

Hi Lernica, I also take 5mg Valium 2x a day and Elavil 10mg at night.

My pain aches and aches. Sometimes burns and shocks

Give my congrats to your daughter, Lernica. Praying her success over these next difficult long years.

As M

Hi all, I have just experienced hell on earth last night and today. It all started on Saturday with my hands and extremities tingling and losing feeling. Then, my vision because extremely blurred. Last night was the worst when I couldn't sleep at all because it seemed as though my legs ached like I ...

Faith, I'm glad you posted this. While I am no longer on Neurontin (took pre-surgery), I have just experienced hell on earth last night and today. It all started on Saturday with my hands and extremities tingling and losing feeling. Then, my vision because extremely blurred. Last night was the worst...

Mulan,

I just know I have the most pain from those circular spots and they can cause pain, tingling or prickling in the vulvar area. I also semi-have bladder sx. Half my bladder symptoms resolved and I know after my next surgery they will be completely resolved.

AM