Health Organization for Pudendal Education

John, are you out there ? How is your stimulator working ? I hope things are going OK. I was going to share a few things with you if you are still in communicado.....bpg

You can't go wrong with walking. make your pace brisk. Start with 20-30 minutes and see if you can build up to 45-60 minutes per day. Also, you got to stretch everyday and lengthen and strengthen all important muscles like the psoas muscle, piriformis, hip flexors, multifidas, hamstrings, and gluteu...

So whats up Ernie ? How are things going ?...............BG

Not in your head Bro....lets start with that. I have same/similar symptom, mine were concurrent with L4-5 rupture and discectomy. Have you tried Lyrica and/or Cymbata ? Or something similar ?....BG

Hope, I have a neuromodulator to help with my PN pain. I can tell you about my perceived pros and cons. I, also, like you, went to see Dr. Marvel as one of his male patients. Cant remember...but have you tried Lyrica and/or Cymbalta ? My wife is an OB/GYN incidentally....BG

G, Lyrica was a big help for me. I started off at 75mg a day but it was not enough. Doc increased it to 150 mg a day and it really helped. Gotta give it a few weeks to kick in. Are you doing some exercises to loosen, stretch, and strengthen ?

Goldman, I am a male PN/PNE patient with some symptoms like yours. Moreover, my feelings about the experience are a lot like what you are describing (fear, panic, an abyss). Do you want to discuss via this forum ?- BrianG