Health Organization for Pudendal Education

I took a risk and tried it. It helped! I'm not "cured" but for me it was like a good guide. It helped me get more mobile, reduced pain by about ...30%? There is no real communication or contact and that was really disappointing. I just had a couple of simple questions but I got nothing. It...

Omg!! Wow! I have been fantasizing about buying this chair for about a year!! I'm so happy to hear that it works for you. I've used a plastic posture seat - a "Sitsmart" by Backjoy." Lightweight, easy to carry around so I always have a hard seat that allows me to sit on my sits bones....

Thanks for the suggestion. I would never have thought of this. It's pricey but I'm putting it on my list.

My PN began after 6mos of back to back yeast infections following a pretty straightforward partial hysterectomy. Even my gyn was mystified at why it kept coming back. Maybe it has to do w the hysterectomy, but my gyn (obviously) carefully investigated that... It's impossible to know & who'd want...

Dear All. This is a belated reply but I want to post in case anyone else is struggling w anticonvulsant. Keppra was the medication that gave me a similar experience. Emotional side effects were absolutely frightful. Hair trigger temper but also a wee bit of pain improvement. Changed dosage & sid...

I'm about to lose my cool. I've had PN for about 7yrs. It has derailed my life so to thoroughly that I stopped counting. For years I used a reclining work station. It didn't take the pain away but it extended my ability to endure. However, after a few years, I could not tolerate it bc it caused uppe...

My experience with MMJ hasn't been as successful wrt true pain reduction, BUT I still recommend cannabis use--yes, WITH THC. It doesn't heal, but it's nice to relax if your pain is constant. I've always been AGAINST recreational drug *and* alcohol use, but the difference this has made for me has bee...

I think some people are prone to physical response to stress. Stress changes your physiological state, just as "too much activity" might do. I have had neuro type pain all my adult life and it always gets worse with stress. PN has been so overwhelming these past five years, I can barely di...

Thanks, Violet! Thanks for your encouragement. I appreciate it so much. I'm grateful for your commitment to this forum along with other dedicated folks. It matters to me and so many others. Please DO NOT be intimidated by my writing! Writing was a part of my work for most of my life, so it's just wh...

Hi, Tara. I just posted a few minutes ago after a few years away. I've had PN for 5 years. Your journey sounds so familiar. I'm amazed. I too am reaching out. Life is too hard to do on your own. Although I know I'm loved by friends and family, there seems to necessarily be an aloneness in debilitati...