Health Organization for Pudendal Education

Hello all, I can’t believe it’s been almost 3 months since my last post. I am officially past the one-year mark of losing my uterus and gaining a debilitating disorder. November 9th was a tough day for me, but I didn’t let it get me down too much. As my pastor says – “if you’re not dead, you’re not ...

Hi everyone- I had my diagnostic block on August 16. It definitely worked, but only for about 45 minutes. The block had just the numbing agent and no steroids. After it wore off, the pain was raging for about 6 days, and then it "calmed down" to the previous normal level. I went back today...

Hi Maura- I am so sorry you're in a dark place with the pain right now. I too am continually frustrated with the wait time between every appointment with little to no relief in between. It seems everything I need has a 3-6 week wait with no end in sight. Although my husband and kids are super suppor...

Hi everyone- I wanted to give an update because I do have some treatment and pain relief options on the horizon. The best news is that Dr. C called me last week with a PT about half an hour away. She is an independent PT with her own private office, and she does not advertise that she treats PN. Add...

Hello- I don't have much to offer in terms of what you can do next, but I wanted to let you know you are not alone and there are many others that have PN that successfully manage the condition. I am at the 8 month mark and I have to keep telling myself that so I don't give up. It is such a painful a...

Now I have my official diagnosis - It is definitely PN. Went to Dr. C Monday afternoon. The drive up was uneventful and my pain level remained at about a 6 which is a "great day" level. We even had lunch prior to the appointment and I sat at a restaurant booth without being too uncomfortab...

Hi there- I am so glad you called and he can get you in so soon. From the time I called for a consult to my appointment on Monday it was a three month period. He is just so busy - he told me he does multiple 3-4 pudendal nerve surgeries a week! As for how I am - nothing has changed except I feel lik...

Hi Yvonne- I encourage you to call Dr. Conway's office despite the 5 hour drive. You can be scheduled for a free phone consultation with him so he can determine if your symptoms sound like PN damage. I had my call with him in May and we talked for 10-15 minutes before he determined this is the likel...

Hi Ladies- I had a trigger point injection to the levator ani. The pelvic doctor in Providence thought I had a pudendal nerve block the first time with my regular doctor, but it was a trigger point injection as well. There was just some confusion because he didn't have a chance to review my medical ...

Thank you Patty and Violet for the responses. I am almost 24 hours out from the injection yesterday. What an awful experience. It was a realm of pain I did not enjoy being awake for. Dr. Rardin said that if it hurt the way it did then he was in the right spot. After the injection I was light headed ...