Health Organization for Pudendal Education

I'm sorry I haven't responded for a while. With things being up and down for so long, I found my mental health was really deteriorating when I fixated on this condition and these forums, so had to take a break. I do appreciate everyone's support and concern. For probably a month or so, I had been do...

Thank you both. I asked the doctor if he could refer me to a pain clinic, and he said he couldn't. He suggested meditation. I've been able to have my son crawl up next me in chairs and sofas to cuddle, which is nice, but it's so hard to say, "I can't" when he asks me to pick him up. I wish...

Violet, I don't know for certain, but the best guess is that I fractured my tailbone 8 years ago. (My symptoms began about 2.5 years after that.) I was also always active, and I did lots of running, cycling, and hiking. My symptoms were very bad when they started, and I was able to get an ongoing pr...

Thank you both. I think I was having a little breakdown on Saturday, and it's hard, as you all know. Dr. Dellon has a reputation for not being the best communicator, and that's really been my experience. He also told me that I can no longer lift my son up (he's 3), when I asked if I could once I hit...

I'm kind of despairing right now, tbh. I've been in increased pain for several days now, and Dr. Dellon hasn't really been responding well to my emails. (He's really not a great communicator, I've found. I wrote saying that though I'd been better for a couple weeks, my pain was worse and I was worri...

So, it's been five weeks now, and I am doing better. I'm not cured by any stretch yet, but I am much better than I was two weeks ago. I spoke with Dr. Marvel, who many of you know as one the PN experts in the country, and he said it'd be impossible to know for sure how successful everything would be...

Thank you so much, April! Honestly, I've been a mess for the past two days, and this helped me hold onto hope more than you know. It feels like I'm asking for something huge and selfish by hoping that my pain is reduced or eliminated, but it really shouldn't feel that way. I hate the idea of my life...

I've been following this forum for about a year now, but I'm posting for the first time because I had surgery with Dr. Dellon earlier this month, and I'm scared that it wasn't successful because I'm still in a lot of pain (more than I had prior to surgery). He removed the damanged portion of the per...