Search found 10 matches

by Lorelei M
Fri Oct 20, 2023 6:37 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: Book Recommendation
Replies: 1
Views: 473

Book Recommendation

A Canadian author has written a book all about how women are not believed and are treated poorly when they have endometriosis. I know it is different from PN, but I'm guessing there is a ton of cross over there we could all relate to (pelvic pain), regardless of gender. I gather it has research and ...
by Lorelei M
Tue Aug 15, 2023 12:17 am
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: This vs other PN websites?
Replies: 3
Views: 623

Re: This vs other PN websites?

Thanks April

Yes I find this is the best site for sure--thank you so much for all the work you do.

I will continue to direct folks here if they are looking for info.

Best
by Lorelei M
Mon Aug 14, 2023 1:19 am
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: This vs other PN websites?
Replies: 3
Views: 623

This vs other PN websites?

Hello there I have a question about the pudendalhope.org website and the pudendalhope.info forum in relation to some other websites out there. For instance, is this group in anyway related to the "pudendal hope" facebook group? My sense is no. Is this group in anyway related to the PN redd...
by Lorelei M
Sun Aug 13, 2023 7:10 pm
Forum: PHYSIOTHERAPY
Topic: Poor advice from Physiotherapist?
Replies: 4
Views: 2472

Re: Poor advice from Physiotherapist?

Thank you so much Violet Your response is very validating. Yes I just perceive many of the PTs are operating from a different paradigm which discounts the possibility of a nerve that is irritated and doesn't slip so easily. I think with all the big infections I had it is unlikely there is not some a...
by Lorelei M
Sat Aug 12, 2023 7:09 pm
Forum: PHYSIOTHERAPY
Topic: Poor advice from Physiotherapist?
Replies: 4
Views: 2472

Poor advice from Physiotherapist?

I'm not sure if this is the right place to post. I welcome any input I have had PN for the past 8 years. 46yFemale. 8 Years ago I had a rare complicated severe fungal bladder infection, followed by several years of brief infections and IC flare ups due to altered bladder tissues. Prior to that I had...
by Lorelei M
Sat Feb 04, 2023 8:56 pm
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: My nightmare: is it PN, infection or what ?
Replies: 5
Views: 1541

Re: My nightmare: is it PN, infection or what ?

I don't have all of your symptoms but the symptom of pain after a bowel movement (BM) is a common one, especially as you describe radiating up from the rear as though running along the nerve until creating bladder pain. There are some other posts in the forum about this. I have experienced this at t...
by Lorelei M
Thu Nov 25, 2021 9:07 am
Forum: SOCIAL DISCUSSIONS & FUN
Topic: How to go about dating men?
Replies: 15
Views: 2241

Re: How to go about dating men?

I know your original post was a while ago but I will add my thoughts in case it helps others in the same boat. I think many of us have these same thoughts, worries, concerns..which are of course very valid and real, and worse when the pain is worse (makes me feel unfit for relationship at times like...
by Lorelei M
Tue Nov 09, 2021 7:25 pm
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Vaginal thrush cause of PN?
Replies: 11
Views: 3023

Re: Vaginal thrush cause of PN?

My PN was caused by an out of control fungal infection in the bladder/vagina in 2015. Prior to that time I had no history of yeast infections or UTIs and perfect health all around. No pain of any type, healthy body regular yoga, low stress etc. I had a mild lower UTI from intercourse (e coli) and wa...
by Lorelei M
Tue May 04, 2021 11:08 pm
Forum: MRI/MRN
Topic: Radiologist for pelvic floor MRI
Replies: 2
Views: 11722

Re: Radiologist for pelvic floor MRI

somewhere in this forum ppl recommended a woman in NYC I will try to find it. Apparently she is the best in the USA and takes patients for PN MRI from outside NY if accepted. I called her office pre pandemic but then had to leave it...
by Lorelei M
Mon Sep 23, 2019 4:31 am
Forum: WELCOME CENTER
Topic: Wanting a child but don’t know were to start...
Replies: 2
Views: 2015

Re: Wanting a child but don’t know were to start...

You may want to contact the Physio therapy team at Sarton physio in California. They have 3 offices run by Julie Sarton and her team. They specialize in PN issues and have helped women wanting to pursue pregnancy who have PN. Julie in particular is knowledgeable re pregnancy and pelvic issues. I jus...

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