Health Organization for Pudendal Education

It seemed so good, it's hard to see you at the baseline again. Keep pushing forward I know. It's sad that I had to keep my expectations very very low so I could appreciate any improvement, however small. But I am glad that I finally reached out to this doctor, as it had been some years since I've b...

I am circling back here to followup on how things have been since late June when I completed the 6 rounds of weekly trigger point injections: My symptoms of pudendal neuralgia, PGAD, and lower left ab pain have been greatly reduced (by about 75%) compared to the months long flare-up I was in prior t...

Related journal article:
https://academic.oup.com/jsm/article/20/2/210/6985898#

Just mere hours after my last post I awoke around midnight with the beginnings of a flare starting in my left vulva. Uggh!! I tried to push it out of my mind and go back to sleep but no luck so I took a muscle relaxer, Pyridium, and some Tylenol as well as my evening dose of Gabapetin which I had fo...

I had the 4th round of injections yesterday and so far so good! And not currently flaring. YAY!

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Still flaring badly. In one week I'm supposed to have the 4th round of injections but instead I may ask for a bladder instillation containing lidocaine or similar. When the PGAD flares my bladder is just as angry as my clitoris and left vulva. I started on Cymbalta and Gabapentin recently but they h...

Thanks @Violet! Yesterday morning about two hours before my 3rd round of injections I lifted something heavy which sent me into a huge flare again. I continued to flare all day after the injections. In the afternoon I applied a lidocaine patch to left vulva and clitoris which calmed things down and ...

After several months of a terrible flare-up of my PGAD and PN(?) symptoms I received vaginal trigger point injections consisting of lidocaine and hydrocortisone. I will get the injections weekly for 6 weeks. I've completed two rounds so far. After the first round I was devastated as I flared even mo...

I had surgery to repair a posterior rectocele and uterine prolapse. The surgery did not make my pudendal neuralgia worse or better but other symptoms I had were much improved by the surgery (constipation, feelings of vagina dropping, pressure, and looseness).

Just a quick note on my progress— UroGyn prescribed 10 mg amitriptyline back in February and it has been surprisingly effective, reducing my pain and PGAD symptoms fairly quickly by about 50%! I have had more good than bad days lately. My symptoms while not fully resolved are manageable right now , ...