Health Organization for Pudendal Education

Hi Violet, That is so amazing! I'm so happy to hear this! Thank you for all you do for the PN community. I think as much as it's comforting to know we aren't alone in this pain, it's even more amazing to hear of success stories, so thank you for sharing yours. And yes, I agree that there must be som...

Hi Ray, Thanks for the heads up on the DRG. That was the pain management doctor's very last recommendation if all other options were exhausted. I know that DRG is relatively new, and especially for a rare condition such as PN, so very limited data (one study published in a journal in 2019). I had no...

Hi Violet, Thank you for your thorough and kind response! I'm so happy to hear that you have a good quality of life now following your decompression surgery. Are you still on medications or pain-free without them? I do love nature and would consider myself to be outdoorsy. Since my baby was born 2 y...

Hi Stephanies, I'm so sorry to hear that your pain has returned as well. I had not heard of Tarlov cysts so had to do a quick google search. Do you think this is the cause for the return of your pain? Did they discover the cysts via MRI? Are there surgeries for that condition as well? If I do not re...

Hi All, I'm new here, so as you can guess, I'm suffering from pudendal neuralgia...again. I say again, because I was completely free of symptoms for the past 3 years up until a month ago. I always promised I'd share my story online if I ever got better, and I never did. So here it is. In 2006 I had ...