Health Organization for Pudendal Education

I understand and feel your pain - in all forms. On a daily basis I wonder, "why bother?" I'm barely functioning. I'm exhausted from being "on", i.e., pretending that all is well as I've lost family (what few I had left) and friends because not only do they not understand, they ju...

Hi Cari. This too has been weighing on my mind a great deal and of course can releate with you and many thousands of others with chronic illness. My husband and I are self-employed and have a 2-person "group" insurance (you can probably imagine how pricey that is), then I work for my oncol...

of whether one is able to procure disability or not and I'm, to say the least, confused. My husband and I are self-employed, have a 2-group insurance policy (you probably can imagine what our premiums are!). One account from a friend of mine (different state - Illinois, USA), was not able to get dis...

JAT, both endometriosis and falls causing pelvic misalignment/SI joint problems can be possible causes of pudendal neuropathy and difficulty with bowel movements . Have you been evaluated by a physical therapist yet? Hi Violet. I apologise for the delay in responding. After I undergo a battery of p...

Hi. 1. Has anyone experienced feeling much better 1-2 days and then the next going back to square one? 2. My physician ordered Lyrica. I took it for a full 24 hours; 50 mg capsules 3x day. It made me soooo weird - beyond feeling "loopy", that I stopped taking it for about 24 hours, then to...

Hi.

A forum specifically for emotional and/or psychological support would be extremely helpful. Consideration for this would be most appreciative.

JAT

Calluna: I should have clarified my comment with respect to physicians informing me that I need psychotherapy. In reality, what they were doing was writing me off alone as a psych case. On the other hand I fully understand the benefits of psychiatric assistance; been there, done that. I did have a g...

I've been referred to a neurologist in the Chicagoland area (by my gynecologist) who specializes in women's neurological issues, and was wondering if any of you have heard of this physician and/or have any information on her track record, et cetera. I've checked the list of physicians on this site, ...

Hi. Has anyone else here experienced the following: Due to their lack of knowledge and subsequent egos, "physicians" accuse you of being a drug-seeker, accuse you of being an attention-seeker, tell you that you need psychotherapy, you're yelled at and/or virtually laughed at? Have they tre...

Hi Gail. I truly, truly understand what you are going through in every sence. I too feel isolated... this is one of those unfortunate situations in life in which unless you're experiencing whatever it is, friends, family, co-workers cannot possibly understand/relate. As for physicians - well... that...