Health Organization for Pudendal Education

Hi Catherine I would be very interested in the data gathered from this survey and hear how others are managing, just checked back into the forum ... always a reality check to remind those of us who have battled the 'beast' to remember how it used to be... can you send me a link to the results please...

Hi Eliza, For the first time in about 5 years I sat down and read my PN journals and was reminded vividly of the nightmare it was for me. My story is probably old and in the archives by now...last month I stopped Gabapentin/Neurontin which I had clung onto as it had been part of my life for almost t...

Hi there
I can't speak highly enough of Prof Vancaillie ... I am in a great space almost 5 years down the track. I was one of the first and I am a success story, I have my life back.
Good luck, believe and hope : )

Jude

You have found someone to give you internal botox in Dunedin ?

J

Have you made any progress kia kaha ? I hope you are persevering and getting some answers ... maybe I will put my Wayne Gillett letter together in the school holidays.

J

Hi Catherine This update is just excellent, so great to read on the ongoing progress and refinement of techniques, if only the kiwi sufferers could have better access to someone with the faith and credibility of Prof V. Unfortunately there has been little progress here and I sooooo wish some medical...

Hey Kia Kaha
Finally some headway for you !!! That is the BEST news that the doors are finally opening.Thinking of you Monday,

J

Hi PN buddies I am pleased the Oxford Clinic are on board as I tried without success there after my PN surgery in Sydney. I am so pleased about this. The doctor I worked with there (unsuccessfully) had worked alongside Thierry in Sydney pre PN clinic days. He DID NOT want to know. These other two do...

Hi there from NZ Your symptoms are just like mine...anal pain the primary concern and bowels motions setting the day off with a bang ! Reading your post was so familiar, I am 5 years post op via Vancaillie in Sydney. I know it is a very long journey, take one day at a time and remember there are peo...

I am very interested in EXACTLY which pain specialist in Dunedin this was??? Catherine, you know I am with you 100%, Prof V gave me back my life and was the most compassionate, gentle and sincere man ever, charlaton ! what sort of word is that?? I m ashamed to be a kiwi when I hear this terrible acc...