Health Organization for Pudendal Education

Hi Barre, It is a very difficult decision. I wish you the best with whatever decision you make. Violet After another visit to doctor Bollens I finally decided to go ahead with the surgery, everything is already planned for the 30th of April. Based on my somewhat atypical symptoms he will try and cu...

Thank you, I have been to Bollens twice and he offered surgery twice but each time I canceled or said no. But I guess that the best long term solution is laparoscopic surgery, seems I have little choice left if I ever want to have some decent quality of life. PT etc seems to work but temporary at be...

Is it normal with PN that when seated it's mostly just discomfort and/or some minor pain but once I get up after thirty seconds or a minute I get intense burning pain and great discomfort in perineum/sitbone/groin? Why not while actually seated? And is it normal to just have pelvic pain and cramped ...

Tell me about it, my family seems to think it's all some sort of joke and I'm exaggerating, my mother literally said, what's the big deal everyone has pain, I have pain in my arm, she's 72 and I'm 48 and I can barely do my hobbies anymore , go figure. My girlfriend also literally told me she is tire...

The basic stuff, they tried dry needling, stretches and core strengthening exercises (I don't do this as I should've I admit because it's painful), but without or very temporary results. My PT now referred me to a pain coach because she suspects some sensitization and a psychological factor after on...

Piriformis involvement has already been confirmed by several PT's. One PT was quite baffled that it keeps going in cramp after pretty mundane activity. The thing that bothers me is kind of the chicken and egg , is it the piriformis causing some pudendal symptoms or the other way around? No one seems...

I already went to a neurologist a year ago after they took the scans and he did an EMG test of the sciatic nerve and back and results where fine, so he concluded it was not from my back. Bollens said pseudo sciatica is pretty common with PN though because the piriformis muscle gets tight and compres...

Laparoscopic surgery with Dr. Bollens is planned on the 17th of April. But to be honest, i'm still not sure if this will actually fix the problem. I have maybe five different diagnosis ranging from a lower back issue (MRI showed disc bulging and spinal stenosis) but according to the doctors this is ...

Thanks for the reply Violet, Yes doctor Bollens was very kind and took his time answering my questions including the risks, but they are very low in his experienced opinion but off course it's still surgery and never completely risk free. Off course the risk of not doing anything is very real as wel...

Hello, An update after suffering with symptoms for 10 months, Current symptoms are allodyniai n th groin/perineal/anal area, burning and pain in perineum and general perineal after sitting for longer than 15 minutes on soft chairs. Luckily not much functional problems, except for weaker and less int...