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Carbamazepine /Tegretol

Posted: Mon Mar 03, 2014 4:13 pm
by Dorothy
I am in UK and Carbamazepine isn't a recommended treatment for peripheral or other neuropathy - which is probably the thread they follow for PN - but it is rec for trigeminal neuralgia. After failing with pregabalin, amitriptyline and nortriptyline, I asked for carbamazepine. I really didn't want gabapentin as pregabalin had given me Alzheimer's-like symptoms.

And the carbamazepine is working!! it's early days. I started on 100mg a day and increased each week to 200mg daily, 300mg etc. Now on 400mg. First week on 400mg was wonderful and nearly pain-free but now the pain is returning. It's a strange drug that speeds up its own metabolism so gets less effective!!.Also has effects on lots of other drugs too. The screaming pain has gone. Still standing for breakfast after a few days being able to sit but it is encouraging.

Dorothy