Dr Dellon's Opinion on STL During Surgery

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Celeste
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Location: central Ohio

Re: Dr Dellon's Opinion on STL During Surgery

Post by Celeste »

If he's promising 80% success rate, well then who wouldn't want to take a chance on that? I agree with Don, time will tell. I look forward to hearing how people do with this surgery.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
AliPasha1
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Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: Dr Dellon's Opinion on STL During Surgery

Post by AliPasha1 »

HI Mulan and PS,
I would like to add that's the dorsal nerve is a branch of the Pudendal Nerve as you are already aware of.Recently Dr. Dellon explored the Perinial branch in one patient with great results.It was Professor Aszmann,Dellon and Hoffman and who worked on the dorsal nerve entrapment.According to Dr. Aszmann,they worked on at least 100 cadavers to get those results.However,they haven't ventured in the PN area before i.e the Alcock's Canal,the ligament grip and the ischial spine because it's too deep in the Pelvis and Dr. Dellon got into it recently.

And again time will tell whether Dr. Dellon can even achieve a 80% success rate or better without creating any Pelvic instability.That remains a challenge for him.And I sincerely hope that he does succeed.Because patients have had enough of the PNE drama which includes me.

However PS, since you don't reside in the US and are a Canadian citizen,and neither are you a US citizen,a permenant Residence or a legal alien and don't have any US medical insurance,you will have to pay cash like any other foreigner.There is no argument there.Infact, it's a no brainer and hopefully no offence taken because that's just a sad reality.

It's funny that President Obama is pushing for every American to have Medical insurance and on another hand you have doctors who are practicing "Botique Medicine" and refuse to take Medical Insurance and getting away with it.This is a very serious issue indeed.

I believe that it's a fight between the insurance companies and the doctors and the poor patients suffer. :cry:

Take care,
Ali
Last edited by AliPasha1 on Mon May 02, 2011 1:35 am, edited 2 times in total.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Pelvis Stressly
Posts: 297
Joined: Fri Sep 17, 2010 3:56 pm
Location: Toronto

Re: Dr Dellon's Opinion on STL During Surgery

Post by Pelvis Stressly »

AliPasha1 wrote:However,they haven't ventured in the PN area before
I agree w. that as far as number of surgeries performed thus far, but the original question was Dellon's degree of PNE knowledge. And you only have to read either of their two studies on this new potential site of compression (dorsal branch) to understand that they had a very thorough grasp of the existing research on 'classical' PNE surgery before they set out to identify this new site (and develop a corresponding surgery).
AliPasha1 wrote:And again time will tell whether Dr. Dellon can even achieve a 80% success rate or better
I'm still not sure where this 80% figure being thrown about in this thread has come from. Didn't Dellon himself tell you that he's actually getting a 60% success rate so far when it comes to "relieving pain and restoring sensation"? (referring specifically to the dorsal branch decomp. here)
AliPasha1 wrote:However PS, since you don't reside in the US and are a Canadian citizen,and neither are you a US citizen,a permenant Residence or a legal alien and don't have any US medical insurance,you will have to pay cash like any other foreigner.There is no argument there.Infact, it's a no brainer.
I never made any such argument though. Where did I say I expected to show up at Dellon's office & be treated for free?!
PS
donstore
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Location: San Francisco

Re: Dr Dellon's Opinion on STL During Surgery

Post by donstore »

I would like to point out that when I characterized Dr. Dellon as a smart businessman trying to maximize profit, I didn't mean it as a compliment or recommendation. I don't begrudge any physician a comfortable living but I would hope that helping their patients would take precedence over maximizing their income. Also, when I said that any price would be worth it for a cure, I was only characterizing the desperate nature of finding a cure for this affliction and would never justify putting profit ahead of patient care.

Best Wishes,

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: Dr Dellon's Opinion on STL During Surgery

Post by AliPasha1 »

Hi Donstore,
I completely agree with you.

PS,
That's what he said in his correspondence.He strives for 80% but gets about 90% success rate.If the success rate is 33% like other PNE surgeons then he won't operate.He only strives for excellence because his reputation is at stake.

That is what he said about Dorsal Nerve decompression.But when I asked him that the success rate of other PNE surgeons is between 33%-40%,and hence why should I come to him since he doesn't take insurance and his answer was that he is unlike other PNE surgeons because he strives for 80% and gets a 90% success rate.He won't operate for a 33%-40% success rate.

So we have to see and wait and give the man time to prove himself.And I sincerely hope that he lives upto his reputation.

All the best,
Ali
Last edited by AliPasha1 on Mon May 02, 2011 1:35 am, edited 1 time in total.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Pelvis Stressly
Posts: 297
Joined: Fri Sep 17, 2010 3:56 pm
Location: Toronto

Re: Dr Dellon's Opinion on STL During Surgery

Post by Pelvis Stressly »

AliPasha1 wrote:He strives for 80% but gets about 90% success rate.
Meaning he's striving for less of a success rate than what he's actually currently achieving?! :D

Seriously though, I'm still not sure what those figures are referring to. Because you told me last Nov. that he had said 60% to you (see the quote I included from him in my last post). Have you talked to him since (ie. have his success rates improved since then)?
AliPasha1 wrote:And I sincerely hope that he lives upto his reputation.
Agreed.
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: Dr Dellon's Opinion on STL During Surgery

Post by AliPasha1 »

PS,
I visited Dr. Dellon in Baltimore last month and had my dorsal nerve compression confirmed by means of the PSSD test.That's how I know these things.He even took a picture of my incision of my PNE TIR surgery.

And one more thing,Professor Oskar Aszmann has done about 30 Doesal nerve decompression surgeries and he believes that his results are higher now.Even Judy Birch from the Nantes team came to visit him in Vienna,Austria last month.I believe Professor Roger Robert of Nantes,France sent her to see Professor Oskar Aszmann.

The whole point is not everybody needs PNE surgery because they have other Peripherial Nerve branch issues that needs to be sorted out first before anyone proceeds with the PNE surgery.Because one lady had PNE surgery 10 months ago and didn't profit from it and then she had dorsal/Perineal surgery with Dr. Dellon and got rid of her main symptoms right way and she is well pleased. :D

I guess the next step for the PNE surgeons is to explore these perenial branches.You have no idea how Pionogal and I have made such a difference in the PNE world. :D

Take care,
Ali

PS Donstore is correct. Dr. Dellon has no diagnostic tool as far as PNE is concerned.In my case, he used the PSSD test for my dorsal nerve decompression and he was heavily relying on my case history, Dr. Potter's MRI as well as the Pudendal nerve block.
Last edited by AliPasha1 on Sat Apr 30, 2011 2:29 pm, edited 3 times in total.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
User avatar
Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Dr Dellon's Opinion on STL During Surgery

Post by Celeste »

donstore wrote:I would like to point out that when I characterized Dr. Dellon as a smart businessman trying to maximize profit, I didn't mean it as a compliment or recommendation. I don't begrudge any physician a comfortable living but I would hope that helping their patients would take precedence over maximizing their income. Also, when I said that any price would be worth it for a cure, I was only characterizing the desperate nature of finding a cure for this affliction and would never justify putting profit ahead of patient care.
The thing is...there is nothing illegal about choosing not to take insurance, or setting your rates where you want them to be. MANY medical specialists do this--plastic surgeons, infertility doctors, cosmetic dermatologists, to name a few. Patients have choices about where to go, and presumably they want what the doctor is promising. If they want a certain doctor, though, they need to be prepared to pay in some cases. Some you pay up front with your cash. Others you pay in wait time to be seen. It makes no sense to go on and on about how angry you are at the surgeons, when you can just go somewhere else that IS to your liking.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
Pelvis Stressly
Posts: 297
Joined: Fri Sep 17, 2010 3:56 pm
Location: Toronto

Re: Dr Dellon's Opinion on STL During Surgery

Post by Pelvis Stressly »

AliPasha1 wrote:I visited Dr. Dellon in Baltimore last month and had my dorsal nerve compression confirmed by means of the PSSD test.That's how I know these things.
I'm not doubting what you're saying Ali, I'm just not sure exactly what you're saying. You keep mentioning this 80% success rate, but I'm not sure what exactly that's referring to. Does it pertain specifically to the dorsal branch surgery? (because if so, that obviously differs from the 60% success rate Dellon was claiming back in Nov...which I'm assuming implies he's been getting progressively better results?) Or does it refer to his success rates for all PNE surgeries (both dorsal branch and at the other, more 'traditional' sites)?
AliPasha1 wrote:Dr. Dellon has no diagnostic tool as far as PNE is concerned.
He told you specifically that he can't use the PSSD test to check for other sites of compression? Because Antolak uses his WDT (Warmth Detection Threshold) test to check for traditional PNE, and there's definitely some overlap between the two tests (both measure levels of sensation).
PS
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: Dr Dellon's Opinion on STL During Surgery

Post by AliPasha1 »

Hi PS,
To answer your question,the above statement pertains to Pudental Nerve Entrapment.80% improvement or nothing else.He won't accept anything below that, because his reputation is as stake.He is unlike any other PNE surgeon ,because he believes that they don't know how to decompress a nerve properly and their results are shameful which I can't aggree less when it comes to the results.We have left the argument of Superficial Peripherial nerves which include the dorsal nerve.I also have email correspondences with him which are confidendial and which cannot be shared with the forum.

His PSSD test in only for Superficial periplerial nerves ,such as nerves in the hands,feet, the the male dorsal nerve etc.It can't access the Pudendal Nerve(which is also a Peripheral Nerve)because it's too deep to access in the Pelvis because of it's location.He didn't even do my rectal exam to see if my PN was inflammed or that were the source of pain.There is no warm detection test,PNMLT(which is obsolete and unreliable test anyway).PNE is a totally different ball game than other Peripheral nerves because of it's location,the involvement of the ligaments and most importantly poor surgical results.

I hope it satisfies your questions.

All the Best,
Ali
Last edited by AliPasha1 on Mon May 02, 2011 1:39 am, edited 3 times in total.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
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