what hysterectomies most likely to cause PN?

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: what hysterectomies most likely to cause PN?

Post by nyt »

Celeste, you are right in that hysterectomies may result in PNE even though I do think it is a little recognized complication. However, the dr.'s don't really understand how one can get PNE from a hysterectomy. Most dr.'s think it is the result of an over stretch in other cases if you have very extensive endometriosis then one could theoretically get it from a very invasive surgery by direct damage but all the dr.'s I have asked said the latter would be extremely rare.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
spirit42
Posts: 7
Joined: Thu Mar 31, 2011 1:21 am

Re: what hysterectomies most likely to cause PN?

Post by spirit42 »

I got my PN(E) from a vaginal hysterectomy. Exactly 3 weeks post-op the vaginal burning and hyperarousal began. I went from one gyne to another, 3 times to the STD clinic, to various emergency rooms, my own gyne refused to see me a couple of months after the surgery, which included a cystocele repair and the saga went on and on. It is very likely that in my case there was some damage done to the branches of the pudendal nerve, such as perineal and clitorial, which must have resolved itself, for this nasty arousal went away even before Dr. Hibner operated on me.

spirit42
Jane
Posts: 38
Joined: Tue May 17, 2011 5:07 pm

Re: what hysterectomies most likely to cause PN?

Post by Jane »

I went into hospital for a hysterectomy and at the very last minute the surgeon talked me into having a Sacro-Spinus Fixation. This is where the uterus (in my case prolapsed) is hitched to the Sacro-Spinus ligament with a circular stitch.
As we all now know the Sacro-Spinus ligament is right behind the uterus and therefore in my opinion this kind of surgery should be scrapped because there is a high risk involvement. I knew the minute I came round from the anaesthetic that something was very wrong - it felt as if I had a bonfire in my pelvic area.
Best wishes to you all.

Jane
User avatar
Violet M
Posts: 6679
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: what hysterectomies most likely to cause PN?

Post by Violet M »

Jane, when Dr. Carlstedt did your PNE surgery did he check for a misplaced stitch in the pudendal nerve?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
Amanda
Posts: 450
Joined: Thu Sep 02, 2010 2:33 pm
Location: Dublin, Ireland
Contact:

Re: what hysterectomies most likely to cause PN?

Post by Amanda »

Jane

You have described just how i felt 8 years ago when i had my hysterectomy as soon as i was awake i was in piercing agony and knew somthing was wrong.
I also had a sacrospinous fixation along with a pelvic floor repair and right oophorectomy
( ovary removal) but of course I was told i was a little hyper....!!!!!!!!
I did a survey a few years ago of PN patients who developed PN after a hysterectomy and the highest incidence strangely enough was abdominal hysterectomies........i strongly believe that a single stitch in the wrong place near or into the PN is the cause of many people developing Pudendal Neuralgia after a hysterectomy.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
calluna
Posts: 1058
Joined: Mon Sep 27, 2010 11:57 pm

Re: what hysterectomies most likely to cause PN?

Post by calluna »

As to whether sacro-spinous fixation should or should not be used - not using it means that there is a risk of further prolapse.

This is well illustrated by my case - about 15 years ago I had what was intended to be the last of a series of surgeries attempting to repair cystocele, rectocele, and finally uterine prolapse - this was a vaginal hysterectomy, without fixation. It held for about 12 years, I then had a vault prolapse which believe me was not an experience I would like to repeat. It was worse than all the others put together, I would rather be dealing with the pain of PN than be back as I was before the mesh repair.
Post Reply

Return to “ASSOCIATED DISORDERS”