Karyn's MRI Results

[Celeste]

Ligament "repair" puts in two little pieces of cadaver tissue that are nowhere near the size of the 4 that were removed in a bilateral surgery. It may be that it only has a placebo effect in patients who feel that they received "more" somehow. It is not scientifically proven to offer any benefit; it has not been put through the rigors of a peer-reviewed medical journal, but does in fact serve to drive up the cost of the nerve decompression surgery.

[AliPasha1]

I think something is better than nothing.However,the debate can be if the ligament fails the stress and load test.However, we haven't heard of that yet.
The ligament repair is imperative because it leaves massive pelvic weakness.We aren't just talkinng about walking.We are talking about people resuming a normal life like running,going to the gym.etcThe severing or slicing of the ligaments leaves such weakness especially in females pelvic floor that they cannot even have a natural dilevery after preganancy.They are all advised to have C- section.Because the Pelvis cannot handle the load any more,just like my friend cannot even lift his grocery bags.
As karyn said,we should take the ligament debate somewhere else.This section should be reserved for MRN.

All the best,
Ali

[JeanieC]

Ali,
Thanks for editing your post,

Jeanie

[Karyn]

Uhm ... Do you guys think you can post your disagreement AND your individual MRI results in another thread?
Peacefully,
Karyn

[Missingmylife42]

The MRI showed that my ligaments were ok does That still mean i need surgery. My buttocks and lower back burn sobad when I sit. Like my sacrum I guess But this was since Dr a injections

[Charlie]

Ligament repair is imperative for Pelvic stability.

Ali, I think you have done a great job highlighting the New MRI with Dr Hollis Potter on the forums and I am grateful for that and I am sure many other people are.

However based on what I have learnt I would disagree with you on the point above. I have met people who have had the surgery in France and they have no pelvic instability.

I have also been to see Dr Filler. I asked him about cutting the ligament. Filler only cuts the ligament if he deems it neccessary. He also said though that if you do cut the ligament it does not result in pelvic instability and he has never seen a case where this has happend.

I have had a physical therapist tell me that people can barely walk a 100 yards after pudendal nerve surgery without being in terrible pain due to pelvic instability. I have conversed with a lot of people on the forums and frankly I have yet to meet a person where this is the case. There are a lot of inaccurate scaremongering stories about surgery coming from some PTs.

Celeste is offering her opinion. As far as I know she had her ligament cut and is pain free and does not suffer from pelvic stability. Its hard to argue with her story when she has shared her experience and even put her picture up on the forum and appeared on TV about it.

I wish you all the best with Dr Hibner though and am not critizisng your choice of surgeon.

[Missingmylife42]

Pleasev please someone reply to my post.

[Celeste]

The MRI showed that my ligaments were ok does That still mean i need surgery. My buttocks and lower back burn sobad when I sit. Like my sacrum I guess But this was since Dr a injections

You got a lot of information from your Dr. Potter scan, but I don't really know what any of the PNE doctors would do about it if it was your dorsal nerve. I read a paper once on dorsal nerve decompression from some Czech doctors but I don't really know of anybody who does it in the US.

But to answer your question about your ligaments being "okay"...in PNE it's not an issue of whether your ligaments are unhealthy. It's about if they are pressing too hard on the pudendal nerve. Mine were grown together, but it sounds like yours are not. Sometimes there are little fibers growing from them that "tether" the nerve tightly; they are only found in surgery.

I'm sorry for your pain but it really sounds like you have tried a lot of non-surgical things and nothing has helped. You could always look at pain management medications if you don't want to consult a PNE specialist to try surgery. Let us know what is next for you.

[Karyn]

Hi Missing ...
I tried to connect with you via the forum a few days ago but didn't receive a response. I'd love offer you whatever advice or assistance I can! Could you please share some background with us? I know you mentioned you had nerve blocks with Dr. Antolak and also with Dr. Quesada? Are you from New England? It seems you've been going through this process for quite some time but I can't really tell for sure. Your and my MRI's are very similar, so I'd love to hook up with you to talk about it!
Warm regards,
Karyn

[ezer]

You got a lot of information from your Dr. Potter scan, but I don't really know what any of the PNE doctors would do about it if it was your dorsal nerve. I read a paper once on dorsal nerve decompression from some Czech doctors but I don't really know of anybody who does it in the US.

Dr.FIller does decompression of the dorsal nerve. He says that it is really rare though. It is a minor intervention as the nerve is quite accessible.