Pudendal neuralgia/chronic pelvic pain syndrome

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ChrisUK
Posts: 41
Joined: Mon Nov 15, 2010 7:10 pm

Pudendal neuralgia/chronic pelvic pain syndrome

Post by ChrisUK »

Hi, still suffering chronic anal pain. Seen many consultants, latest view is that I don't have pn but have chronic pelvic pain syndrome. Am on 10mg amitrytyline. Can anyone tell me what is the difference? I read on a website that pn and cpps is always linked. Am due to have botox to pelvic floor next week. Many thanks, chris
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Pudendal neuralgia/chronic pelvic pain syndrome

Post by nyt »

CPPS is a general term that describes any pelvic pain, no matter the source whether is is endometriosis, inguinal hernia, etc, that lasts longer than 6 months. PN is a subclass of CPPS because PN pain is due to the the pudendal nerve. Because PN pain usually lasts longer than 6 months that is why it is in the category of CPPS. Many dr.'s would write something like CPPS secondary to PN.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Re: Pudendal neuralgia/chronic pelvic pain syndrome

Post by pianogal »

when I had anal pain, which was rare, I found that abdominal massage of the psoas would provide relief of the anal pain. Deep pressure hard on the psoas for 90 seconds or more... with a stick or with someone else helping you. Also, hot baths help... diarrhea makes it worse from muscles straining. Everyone is different but it's worth a try.
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
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