Just discovered this today. Here is my story.

[mar2012]

Six years ago I had surgery to remove a mass in my pelvis. At that time, I was experiencing frequent and painful urination and hyperarousal even at a young age. Once the mass was removed, it took months for all of these feelings to go away. Six years later I am faced with the same symptoms. However, tests and ultrasounds confirm that there is nothing abnormal in me pelvis this time. I recently had three urinary tract infections within 5 months and I am wondering if this is what caused this. I am new to this site and until today I felt lost and confused about what was wrong with me. Does anyone have any suggestions or comments? Thank you so much.

[HerMajesty]

what tests revealed no pelvic abnormalities? You will find on this site that many patients have had to travel to get the tests which will really show abnormalities. Like if there is scarring from your surgery which has led to a pudendal entrapment, you would probably have to travel to NY and see Dr. Hollis Potter (see MRN / MRI section of this board), who has developed software which enables her to see scar tissue entrapments on a 3T pelvic MRI.
The 3 UTI's sound like part of a complex pelvic pain syndrome in that they can be both cause and effect. Have you had a Urologist do a urodynamic / urine function test? You may well be experiencing a neurogenic urinary retention, that is you might believe that you are emptying your bladder whereas the urodynamic test would show you actually have retention of some urine when you think you are "empty". This would certainly increase risk of UTI's. Then the UTI discomfort would lead to tensing of the pelvic floor muscles, which would be "the straw that broke the camel's back" in terms of bringing on your pelvic symptoms again.
As someone with a complex pelvic pain disorder who lived well with little or no problems for a lot of "in between time", I am trying to explain that your pelvis was not so much made totally normal when the tumor was removed, so much as it was put into long term remission. My remission lasted 17 years during which I was relatively symptom free, but I was never really "normal" so I wound up aggravating the balance with childbirth.
I don't know what is underlying, but I do have a suggestion that MIGHT put you back into remission. Get an exam from a pelvic floor PT to see if you have PFD, Pelvic Floor Dysfunction. This is tight, short, spastic pelvic floor muscles. You could easily have aggravated an existing amount of muscle tension with the UTI's and a pelvic floor PT might be able to work with you to get thiose muscles to lengthen and relax again. There is a list of PT's on this site. not many PNE patients have great luck with pelvic floor PT but I just suspect that you might, since the UTI's were the aggravating factor. Don't stick with it long if you are not seeing an improvement.
Meanwhile, prevent future UTI's. Find out if you do have excess residual causing the UTI's. If so, you will probably have to take one dose of a urinary antibiotic such as Bactrim or macrobid after aggravating factors such as sex or tampon use, and be mindful to drink lots of water and empty your bladder at least every 2 - 4 hours during the day to keep your system flushed out. If you have excess residual the Urologist will probably also suggest self - catheterization; I would avoid that and do the other things I mentioned. If you have PFD, frequent catheterization will only aggravate it.
This is kind of speculative but I hope it helps.

[Violet M]

Mar, have you done anything new or unusual that might have aggravated your pelvic area (including the pudendal nerve) -- such as recent heavy exercise, an injury, fall, excessive sitting, etc.?

Were your UTI's actually confirmed by culture or was the diagnosis made based on symptoms? The reason I ask is that sometimes pudendal neuralgia can feel like a UTI even though there is no bacteria present.