LottaNerve Surgery update

[LottaNerve]

Oh Celeste - - Thank you for posting this!
http://www.youtube.com/watch?v=3ozT8r2F ... r_embedded

I saw this video for the first time two days ago. It brought tears to my eyes. I could barely breath watching it.

Why? I attended the Headache in the Pelvis (aka Wise-Anderson) clinic in the summer of 2008 with my heart full of hope, spent thousands of dollars and hours and hours of time doing Wise's protocol for a year following the clinic.
I thought something was wrong with me because I wasn't getting better and it seemed like every testimonial was overflowing with success.

Dr. David Wise, who is not a medical doctor, but a PhD who earned his credentials in sociology, spoke to me personally during the clinic and once on the phone before the clinic to NEVER consider the PNE surgery, that it was butchery, and that scared me off from even researching it for two years. I went into a serious depression and even told my closest loved ones I did not want to continue living with the pain. I was desperate and miserable. A year ago today my closest friend with PNE took her life, and during her funeral and the grieving process I vowed to pull myself up, ask for help from my loved ones, and try again. My sister came over that weekend and we spent several days reading on all the PNE sites and researching everything we could find, as well as every doctor's published works we could find.

ALso, many of us from that 2008 Wise-Anderson clinic have stayed in touch through email and NONE of them have been healed, although one said the relaxation exercises did help when he tightened up due to stress. They have all gone on to other measures - a couple are going to Mayo clinic, one was diagnosed with Inflammatory Bowel Disease (and has IC too) and several have contacted me for information on PNE surgery. I have directed them to this site and TIPNA, so hopefully I will see a couple of them on the forums at some point. An interesting note about the group I was in is that I was the ONLY female In the group. I was so worried about feeling embarrassed and exposed, but soon I was just "one of the guys" - a fellow PNE sufferer.
------
Today I am four weeks out from PNE surgery and last night we noticed that I could sit for almost 10 minutes! (not on a hard chair though) I am also more mobile and up and walking, where before I was almost completely bedridden. I have very high hopes that I will be able to be a testament to surgery. I am waiting til the real results at 6 months - one year before I shout it to the world, but then I WILL.

By telling people that the surgery route is dangerous and butchery and that the doctors performing surgeries are irresponsible (which he did), "Dr." David Wise is not only doing a disservice to pelvic pain patients, but he actually may be pushing some over the edge, as in my experience.

I think this video is right on. I is factual, not inflammatory, and speaks the truth. My sincere gratitude to those who created it and those who are passing it forward.

[peaches]

Wow! That's a hell of a story LottaNerve.

I'm very pleased for you on your progress so far, and very sorry to hear about your friend. I bet you would have had the surgery earlier if Dr Wise hadn't put you off!

By the way, where did you have your surgery done and by what method?

Cheers
Peaches

[Amanda]

These posts have been split from the thread they were originally written in as they are more appropriate here in this section.

[Celeste]

Here is another link. It shows the deceptive marketing practices used to promote the service. I just really hope that there will be an end to pain patients being misled by these false claims.

http://www.youtube.com/watch?v=kJVcgLmgFr8

[LottaNerve]

Wow! That's a hell of a story LottaNerve.

I'm very pleased for you on your progress so far, and very sorry to hear about your friend. I bet you would have had the surgery earlier if Dr Wise hadn't put you off!

By the way, where did you have your surgery done and by what method?

Cheers
Peaches

Peaches,
Sorry I didn't see your question sooner. I had surgery by Dr. Michael Hibner in Phoenix, AZ using the TG method.

[Karyn]

HI LottaNerve,
How are you feeling this week? I hope a little better every day!
Warm regards,
Karyn

[A's Mommy]

Hi lotta nerve!!

I hope an pray you are having "notta lotta nerve" symptoms and are getting better each day.

Love ya,
AthenasMommy

[Karyn]

LOL!

[Aussie-m]

I'm glad you put those u-tube posts in for us to see . I thought of going to his clinic back in 2008 .We become so desperate to stop the pain . I have found so much spin /BS by therapists and Doctors , i'm glad that we have sites like this to share our experience , I have so many horror as well ,at least now I'm more educated now .It is sad that there is so many people who take advantage of our pain for $$$$.

[Selbourne]

Here is another link. It shows the deceptive marketing practices used to promote the service. I just really hope that there will be an end to pain patients being misled by these false claims.

http://www.youtube.com/watch?v=kJVcgLmgFr8

I think if u say 'deception" u must also allow the other side to respond,, Celest ... so here it is :

http://www.chronicprostatitis.com/forum ... =36&t=7191