YOU ARE ALL SO AWESOME!

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
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carolynm
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

YOU ARE ALL SO AWESOME!

Post by carolynm »

Ladies and Gents,
Thanks to your posts I have self-diagnosed myself early and am playing the dr. roulette game. After spending an hour wielding a pickaxe while doing yardwork, I found myself with numbess to the lower back and perineum. After a couple of days it turned into pain. I have received a L4-5 injection with no relief, a caudal injection yesterday with 3 hours of blissful numbess, a physical therapy appt with her fingers up my hoo-hoo, and a visit to a neurologist who did a rectal exam to palpate my coccyx.....I AM SO DEPRESSED!

I have 2 small children, ages 2 and 1, and cannot even consider surgery due to the lifting restrictions.

PLAN: To Denver in August for an US-guided block at the Centeno-Schultz Pain Center, and a consult in late August with Dr. Ronald Gibbs at the University of Colorado specializing in pelvic pain.

Anyone out there in Colorado as well with some suggestions for PT's, etc?

Your posts have kept me going for weeks now. Thanks to each one of you.

cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: YOU ARE ALL SO AWESOME!

Post by Celeste »

As I recall, Chloe is in Colorado. You might send her a PM.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: YOU ARE ALL SO AWESOME!

Post by janetm2 »

Welcome Carolyn,
If you go to the home page and click on the list of PTs on the left and work your way to North America then USA there are a few PTs listed in Colorado. I am in Maryland so I am I only know what is listed but someone from there may reply to you. I know this is a difficult time and glad you realize we are friends and here to help. Having young ones is hard with a possibility of surgery but even without it is best to limit the lifting, carrying, etc. After surgery for me and I am still trying to keep myself in check, we are getting a new refrigerator with freezer on the bottom so I hope that helps having the fruit veggie drawers up higher. It is tough to rearrange your life but we do. Hang in there and hope you get answers and info soon to help you.
Janet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
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Violet M
Posts: 6890
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: YOU ARE ALL SO AWESOME!

Post by Violet M »

Welcome, Cari. I live one state south of you and I've wielded a few pickaxes myself doing yard work. Nasty soil in our part of the country I guess. :evil:

You mentioned numbness in your lower back as well as the perineum so I was wondering how you have narrowed your diagnosis down to pudendal neuralgia as opposed to a problem originating higher up in your spine. Did the PT check your pelvic alignment and for SI joint dysfunction?

Sorry about your husband not understanding. Maybe it would help if he read this article: http://www.medicalnewstoday.com/releases/54832.php

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: YOU ARE ALL SO AWESOME!

Post by Lernica »

Great article, Violet! Well done.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
carolynm
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Re: YOU ARE ALL SO AWESOME!

Post by carolynm »

Violet,

Thanks for your reply. I have had an MRI of Lumbar and Pelvis so I know there is no abnormalities there. All the symptoms match PN. I will read your article next!

cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
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