Dr. Christopher Filippi UVM/Fletcher Allen

Discussion of magnetic resonance imaging and magnetic resonance neurography
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PN-SufferVT
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Dr. Christopher Filippi UVM/Fletcher Allen

Post by PN-SufferVT »

Everyone,

I know Potter is a genius, but there are other physicians that can complete the 3T MRI(N) on the Pudendal Nerve. My images where completed by Dr. Filippi in Burlington, VT at the teaching hospital Fletcher Allen. I was positive for bi-lateral entrapment and he sat down and went over the images with me in his office. Just and FYI....
PN started in June 2009, quickly pain level went to 10. PN probably caused from long hours sitting in car, followed by weightlifting/sports daily. My pain level are now daily between 1 and 4. I do not know if I have true entrapment, but definitely know I have neuralgia of the PN.
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Violet M
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by Violet M »

Thanks for the info. It only makes sense that there would be more than one person in the world who could do this! :) Were you able to see the entrapments on the images?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by helenlegs 11 »

Excellent information thanks, now we just need more of the same :)
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Karyn
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by Karyn »

Thanks so much for sharing this info! We need all the resources we can get.
Looking forward to hearing about your MRI results ....
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Lernica
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by Lernica »

Thanks PN Sufferer, are you still going for a Potter MRI?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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PN-SufferVT
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by PN-SufferVT »

Violet M wrote:Thanks for the info. It only makes sense that there would be more than one person in the world who could do this! :) Were you able to see the entrapments on the images?
Yes we were definitely able to see the entrapment. It is just north of the sacrotuberous ligament, so it is up in the air a bit whether it is the PF muscle or the ligament itself causing the issue. It was amazing I went to the radiologist's office and he dimmed the lights and we went over the films together. My nerve was enhanced (birghter), thus swollen all the way to the base of the penis from the PF muscle. However, the nerve was less enhanced then it had been two months earlier in a trial run of the MRI. By the images it would appear that I am S L O W L Y healing.
PN started in June 2009, quickly pain level went to 10. PN probably caused from long hours sitting in car, followed by weightlifting/sports daily. My pain level are now daily between 1 and 4. I do not know if I have true entrapment, but definitely know I have neuralgia of the PN.
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Violet M
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by Violet M »

Good news that you are healing - even if it is slowly! Thanks for the info.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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theresa
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by theresa »

Does anyone know of a doctor who does MRI's for pudendall anywhere around Ohio. Winter coming may have to look in another direction besides north. Mid January to see Dr Potter. Maybe south or west.
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susibee
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by susibee »

PN-SufferVT,

Hello, did you ever get a Potter MRI? How are you feeling now?

I'm considering going up to Fletcher Allen to see Dr. Filippi. Just wondering if you have any updates about his MRI.

Thanks!
Vulvodynia diagnosed '01; symptom was occassional vulvar itching/rawness after sex.
Autumn '10, localized clitoral and left labial burning after sex
March '11, new left buttock pain, worsened clitoral/left labial pain/burning.
May '11, increased sitting pain.
Summer '11, pain decreased/plateaued to 0-4/5.
Treatment: 75 mg nortriptyline nightly, definitely helps; PT x 4, didn't really help.
Consults with Hibner and Dellon, left me with questions.
Next step: MRI in NYC or VT.
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jeanne
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Re: Dr. Christopher Filippi UVM/Fletcher Allen

Post by jeanne »

I see a number of people have had the 3T MRI(N) on the Pudendal Nerve. But I don't see any news as to what was done with this info. Is there anyone out there that was able to use the info from the MRI and get a repair to the injured area and be cured? I am in Vermont for the summer and looking into getting the MRI if there is any hope it can see where my problem is and get it fixed. Please respond. I need your help. Thank you.
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