just an update... feeling great on this medicine.. the taper is going really well and my pain is well controlled too. I'll keep you all posted.
Cora
Big News, Medication Taper and Why
Re: Big News, Medication Taper and Why
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Big News, Medication Taper and Why
That's excellent news, glad something is working well for you after such dreadful experiences. Long may it continue.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Big News, Medication Taper and Why
Hi all.. just want to update you... the taper is going ok, I have my good days and not so good. I'm staying at 3mg of Suboxone now and gonna take it real slow. I have my first appointment with my new PMD this week who is supervising my taper. My pain levels are a little higher since my doses have decreased, but I'm managing that part pretty well.. some connective tissue work, ice... and I am going to go back to PT for more connective tissue work cuz it does help with my pain. I'm curious to know if others have had issues with opiate tolerance, and how they have decided to approach it? I don't think we've ever talked about it much on this site and just wondering. This is going to be a very long journey- so would love the support.
Cora
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Big News, Medication Taper and Why
You are going about this in such a sensible manner, glad it's working out for you. Warm wishes from way over here. x
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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pomegranate
- Posts: 157
- Joined: Sat Sep 18, 2010 3:12 am
- Location: Oklahoma
Re: Big News, Medication Taper and Why
Hello Cora!Cora wrote:Hi all.. just want to update you... the taper is going ok, I have my good days and not so good. I'm staying at 3mg of Suboxone now and gonna take it real slow. I have my first appointment with my new PMD this week who is supervising my taper. My pain levels are a little higher since my doses have decreased, but I'm managing that part pretty well.. some connective tissue work, ice... and I am going to go back to PT for more connective tissue work cuz it does help with my pain. I'm curious to know if others have had issues with opiate tolerance, and how they have decided to approach it? I don't think we've ever talked about it much on this site and just wondering. This is going to be a very long journey- so would love the support.
Cora
I will be interested to hear how your return to PT helps you. Don't have much to offer you in regards to your questions, but sending you all my support! Good luck with the appt.
Hugs,
Lauren
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
Re: Big News, Medication Taper and Why
Well.. a quick update today. I saw my pain dr. and we are thinking of starting me on nortryptiline right now. When I see my PMD, who is supervising the taper, I'll decide. She said that with the opiates... it's a real bell curve in terms of how one develops tolerance. She also said that in my case.. with the low doses it was rather a surprise as she has seen people on real high doses taper effortlessly. I guess it's all in the DNA. Who knew ? But.. today was a good day.
Cora
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.