New PNE Chapter on Dr. Dellon's site

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LottaNerve
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Location: Central California
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New PNE Chapter on Dr. Dellon's site

Post by LottaNerve »

Hello PNE'ers and other pelvic nerve sufferers,

There is a new chapter on pelvic pain written by Dr. Dellon and it is now up on his website. It is chapter 12 of his book, titled "Pain Solutions"

I'm so glad I checked today because I knew it was "in the works" and I didn't know how long it would be before he published it. It is full of illustrations and photos, which I found very helpful, plus it is written in a way that is easy to understand.

Here is a direct link to the book, titled "Pain Solutions"
http://www.dellon.com/content/view/116/307/

Or you can go to Dr. Dellon's website - http://www.dellon.com
Click on the link for his book, called "Pain Solutions"
Click on Volume 12 and the chapter will open

(By the way, Volume 1 is really good for an overall understanding of what can go wrong with nerves, such as neuromas.) I wish I had this information before I started having any pelvic procedures. I would have saved myself some painful lessons, and I would have known the right questions to ask!

p.s. Also, the entire book is free, and can be downloaded to your computer to print, or you can just read it onscreen.
http://www.icandpne.wordpress.com
1995 First symptoms of PNE and IC
8/2010 Dr. Hibner, left TG- failed surgery.
3/2011 & 10/2011 - Dr. Dellon, left dorsal/perineal neurolysis -also failed.
1/2012 3-day ketamine infusions. Pain-free for several days! Bladder flared from IC.
11/2012 Intrathecal pain pump (bupivacaine, clonidine, morphine) Dr. Joshua Prager, UCLA.
2/13 My pain is reduced!
5/15 Living life again!
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: New PNE Chapter on Dr. Dellon's site

Post by nyt »

Thanks for the info. The chapter is a wealth of information. Just wish he took insurance! I would be in the poor house if I did all the surgeries he thinks I need. Plus, not sure I agree with everything he recommended but that is a another story for another thread and day. Thanks again.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: New PNE Chapter on Dr. Dellon's site

Post by helenlegs 11 »

Thanks for this lottanerve, very interesting reading. I especially liked the SUMMARY in particular the last sentence.

SUMMARY
Chronic pelvic pain can be treated non-operatively, successfully in most patients
with pelvic floor physiotherapy, medication, and treatment of associated problems,
such as interstitial cystitis, endometriosis, bowel problems and depression. When
these approaches fail, and especially with a history of trauma, the symptoms may be
related to entrapment of the pudendal nerve somewhere along its winding, and
variable anatomic passage from within the pelvis, near the sacrum, to the ischiorectal
fossa, to the pubic ramus, and finally to the penis/clitoris. To determine the location
of the entrapment, the history of the trauma/symptoms, physical findings, and the
results of nerve blocks are critical. Based upon these determinations, a decision can be
made as to the optimum surgical approach for a neurolysis of the pudendal nerve. In
some people, more than one surgical approach may be necessary, one from the front,
at the pubic ramus, and one from the back, transgluteal (ischiorectal), requiring two
different surgeries. There should be hope for relief in 80% of people.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Karyn
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Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: New PNE Chapter on Dr. Dellon's site

Post by Karyn »

helenlegs 11 wrote: There should be hope for relief in 80% of people.
Sounds good! But IS there?!?!!
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
paulette
Posts: 184
Joined: Sun Sep 19, 2010 6:13 pm

Re: New PNE Chapter on Dr. Dellon's site

Post by paulette »

Thanks, LottaNerve,

I have been wondering why I have all these symptoms that no one else seems to have, like decreased sensation from the top of the gluteal fold to the back of the knee. It's because I most likely have entrapment of the FCN! I learned so much from reading that chapter. Now I don't know whether go ahead with my scheduled PN surgery.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: New PNE Chapter on Dr. Dellon's site

Post by nyt »

LottaNerve, how are you since your pudendal surgery with Dr. Dellon? Are you still seeing improvements? Has it been slower going than what you hoped? Is there more surgery in your future because there might be another trapped nerve? Wishing all the best!
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: New PNE Chapter on Dr. Dellon's site

Post by nyt »

Forgot, I don't know where he gets the 80% improvement from? He told me he anticipated 80% improvement on the nerves he recommended I needed surgery on. He has no published statistics on the pudendal nerve. I think he might be using some of his numbers from his other nerve surgeries anticipating the same results.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
calluna
Posts: 1058
Joined: Mon Sep 27, 2010 11:57 pm

Re: New PNE Chapter on Dr. Dellon's site

Post by calluna »

What fascinating reading, it is like a detective story, putting all the clues together. Thankyou so much Lottanerve. I think everyone with PN issues should read this, it is very illuminating.
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helenlegs 11
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Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: New PNE Chapter on Dr. Dellon's site

Post by helenlegs 11 »

Actually nyt on page 35 he seems to be giving himself 100% success rate and is comparing himself with many other surgeons on this list, I think all fall below his success rate.
He may well be right because he has done 'the detective work' and so is using his pubic ramus/litotomy position procedure (5 patients) with compression after the exit to Alcocks canal which has, only recently(ish), been known as a site of entrapment ? ? (was he the first to develop this?)
Of course many of the surgeons may never get 100% success rate because some of the patients entrapment would never be accessible through a TG approach, which is all they offer.
The dates of some of the other surgeons figures are from way back when I'm not sure that anyone was considering that entrapment could occur in the lower (post Alcocks) pudendal, and branches path. I wonder though how many vertical/buttock ss/st ligament and entrance to Alcocks he has done and not got on this list.
It seems a little naughty to use this small very recent sample of patients,a but I could have got my reasoning wrong (what do I know) maybe they are the only published results to compare. So don't try and compare? ? Please correct me if I am way off the mark with this.
I do think apart from that everything he has written just gives us all more valuable information which is fantastic.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: New PNE Chapter on Dr. Dellon's site

Post by nyt »

We have to be careful how Dr. Dellon defines 100% success rate. That does NOT mean cure. If you said you had 90% improvement you would fall into the category of success or if you had 10% improvement you would fall into the category of success. In one of his publications he has divided up how he classifies his success rates so we must be careful that this does NOT equal cure.

I really like Dr. Dellon but he did not give the other side of the story to the ST ligament. He never mentions the publications by Vleeming that show the ST ligament is important for stability. What I wish he would have done is stated the literature is mixed but from his reading and conversations with leading ortho dr.'s he has come to the conclusion the ST ligament is not important. I was bothered by the idea that he didn't mention the papers that show the other side of the story.

I don't know that much about the Neurowrap but from what I understand it can adhere to other structures but is not suppose to adhere to the nerve. However, his pictures are quite convincing.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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