I'm so sorry this happened to you. 
How the world changes for a PNer
Re: How the world changes for a PNer
Grace, that's awful! I'm so sorry this happened to you.
I'm so sorry this happened to you. PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: How the world changes for a PNer
Grace - I'm sorry too - I understand. I was a "shopaholic" when I was younger and let my credit get bad. Little did I know how it would affect things like getting car insurance. I understand the "breadwinner" part too - it's hard when you have to make an income (and I also have to provide the insurance). So, it's off to work I go - PN be damned.
Re: How the world changes for a PNer
one thing that helps me at work, i got one of those chairs that you kneel on, instead of sit, it saved me from standing all day. sitting and laying on my backside are the worst.
Re: How the world changes for a PNer
I had long thick hair before PN but now I am bald with pain 24/7, I dont even look like me.I am unable to enjoy anything in life. No good news brings any joy to me nowadays because my pain is prevalent always. It was an overnight change after a small surgical procedure of colonoscopy and rubberband ligation. I would never wish this even on my worst enemy. I am thanking God for not meeting this doctor before I got my children otherwise I would not have got my children. I am just pulling my life only for my children. Now I am so selfcentred, short tempered and suspicious of everyone around me. The only thing that brings a little peace in me is when I pray to God and utter the name of God. That is my best anti depressant!
Re: How the world changes for a PNer
Sam,
I agree, it's hard to think about anything or anyone else when our pain is so great. Sometimes I over hear someone laughing, and think, "Wow, life is going on all around me, and I am missing out on all of it".
cari
I agree, it's hard to think about anything or anyone else when our pain is so great. Sometimes I over hear someone laughing, and think, "Wow, life is going on all around me, and I am missing out on all of it".
cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Re: How the world changes for a PNer
okay, we have some kind of pudendal nerve damage, entrapment. I am a 57 year old male. I have been dealing with this pain in my backside for over a year now. I have been tested for everything, colonoscopy, prostate, skin problems, MRI, ct scan. Then one day I googled anus nerve damage, and, there it was, pudendal nerve damage, the symptoms were a textbook description of the problem I was having. AHA!
Okay, my wife swapped jobs, I now have no insurance. In my humble opinion, compared to way I feel now, compared to a year ago, there is definite improvement, though the discomfort is still there, just not as bad. Just having a name for the problem gives me comfort. If there is this much improvement over the next year, one of these days the problem may very well be gone( I pray everyday for that).
I just invested in an inversion table. I have been turning myself upside 3 times a day for the last 5 days. I kid you not, I am 20 % better now than I was 5 days ago.
Hard chairs work better for me than soft, I stand most all the time at work, up until 5 days ago I have been lying on my side in the bed when I get home from work, now I can lie on my backside comforatably.
Keep the faith, y'all, do what you can to stay comforatable, it's not the end of the world, we will be fine, that you can rest assured. peace.
Okay, my wife swapped jobs, I now have no insurance. In my humble opinion, compared to way I feel now, compared to a year ago, there is definite improvement, though the discomfort is still there, just not as bad. Just having a name for the problem gives me comfort. If there is this much improvement over the next year, one of these days the problem may very well be gone( I pray everyday for that).
I just invested in an inversion table. I have been turning myself upside 3 times a day for the last 5 days. I kid you not, I am 20 % better now than I was 5 days ago.
Hard chairs work better for me than soft, I stand most all the time at work, up until 5 days ago I have been lying on my side in the bed when I get home from work, now I can lie on my backside comforatably.
Keep the faith, y'all, do what you can to stay comforatable, it's not the end of the world, we will be fine, that you can rest assured. peace.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: How the world changes for a PNer
Good for you 
I hope you continue to improve. The inversion table made my ankles hurt and my face bright red unfortunately that was it. Some physio may be a good idea too.
Take care,
Helen
I hope you continue to improve. The inversion table made my ankles hurt and my face bright red unfortunately that was it. Some physio may be a good idea too.Take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: How the world changes for a PNer
Thanks Helen.helenlegs 11 wrote:Good for you
Take care,
Helen
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DoubleEdgedSword
- Posts: 201
- Joined: Thu Oct 27, 2011 7:15 am
- Location: Ontario, Canada
Re: How the world changes for a PNer
Hmm, how has my life changed with this problem? My doc believes I have P Neuropathy, and we both know I have PGAD..
I sit like a fidgety child, unable to get comfortable or stay that way for long. Most folks would think I have ADHD.
I have become selfish about sex. After going without for 3 days, 'No thanks' isn't an option, hubby!
I'd be wise to take out stock in a pantyliners company.. Several a day, everyday..
I've discovered all kinds of new annoyances.. Pelvic congestion, restless legs, sore hips, lack of sleep, genital pain, unwanted arousal..
Mundane household chores bring about orgasms. Vacuuming, dusting and chopping veggies in particular. Don't get me started on yardwork..
I'm much more prone to depression and dispair the past several months. I have mood swings and crying jags often now.
I'm sure stress is a major contributor to my PGAD.. I worry about it all the time, and it's just a vicious cycle.
As I'm just starting my journey to discover what's causing my problem, I know I have a lot to learn and need to develop my coping skills much more. I'd love to see the day when I just wake up and it's gone.. I didn't "have a life" before this, but I'd gladly trade this in for that boring life again!
I sit like a fidgety child, unable to get comfortable or stay that way for long. Most folks would think I have ADHD.
I have become selfish about sex. After going without for 3 days, 'No thanks' isn't an option, hubby!
I'd be wise to take out stock in a pantyliners company.. Several a day, everyday..
I've discovered all kinds of new annoyances.. Pelvic congestion, restless legs, sore hips, lack of sleep, genital pain, unwanted arousal..
Mundane household chores bring about orgasms. Vacuuming, dusting and chopping veggies in particular. Don't get me started on yardwork..
I'm much more prone to depression and dispair the past several months. I have mood swings and crying jags often now.
I'm sure stress is a major contributor to my PGAD.. I worry about it all the time, and it's just a vicious cycle.
As I'm just starting my journey to discover what's causing my problem, I know I have a lot to learn and need to develop my coping skills much more. I'd love to see the day when I just wake up and it's gone.. I didn't "have a life" before this, but I'd gladly trade this in for that boring life again!
On the road of discovery to see what is causing my PGAD.
Re: How the world changes for a PNer
DES - just a thought - I would suggest not to focus too much on 'finding the cause' of your problem. Many of us never find out exactly what caused it, and spending a lot of time and effort on this is not always helpful. What should help a lot more is focussing on management, looking forwards instead of back....