Hi All,
I just read a couple sentences that made so much sense to me. "People have 1000s of wishes. People who are sick, only have one wish." Does this not hit home or what? It also made me think about all the people in the world that have health issues or sickness or cancer, whatever it may be. This sentence is probably true for all of us. For me, the only thing I would put before being rid of PN is the health of my kids.
Just wanted to share,
Gracie
Made so much sense to me
Made so much sense to me
PN Pain started 12/08
Numerous nerve blocks
Diagnosed 6/09 - Pudendal nerve blocks
TIR Surgery 2/10
Still have PN pain and still looking for cure
Numerous nerve blocks
Diagnosed 6/09 - Pudendal nerve blocks
TIR Surgery 2/10
Still have PN pain and still looking for cure
Re: Made so much sense to me
It does make sense. I know that being pain free is the only wish I have for myself. My husband will get excited about going on vacation but it's not a vacation for me cause the pain goes with me. My vacation is the 4 or 5 hours I get without pain after a nerve block ):
Burning vulva pain began 10/09
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
Re: Made so much sense to me
My boyfriend and I had this exact conversation 2 nights ago.
He explained that his wish is that I would be affectionate like I used to be.
I explained my wish was to be able to use the restroom daily.
Now we are working on group goals for our relationship.
It's much like starting over with dating, accept we already love each other so that part is easy.
One wish, one prayer, one voice. We are all in this together.
Loves to you all
Kathy
He explained that his wish is that I would be affectionate like I used to be.
I explained my wish was to be able to use the restroom daily.
Now we are working on group goals for our relationship.
It's much like starting over with dating, accept we already love each other so that part is easy.
One wish, one prayer, one voice. We are all in this together.
Loves to you all
Kathy
Born with pudendal and obtorator neuralgia. 32 years of being misdiagnosed.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
Re: Made so much sense to me
Gracie;
You are so right. Thanks for putting it into words;
Best wishes for a painless day;
Doreen
You are so right. Thanks for putting it into words;
Best wishes for a painless day;
Doreen
Five pudendal nerve infiltrations with good results.
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
Re: Made so much sense to me
HIts the nail on the head!
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: Made so much sense to me
Great postgracie wrote:Hi All,
"People have 1000s of wishes. People who are sick, only have one wish."
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.