New and needing info on pain flares after nerve block

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Hetty
Posts: 25
Joined: Tue Nov 01, 2011 10:58 am
Location: ireland

New and needing info on pain flares after nerve block

Post by Hetty »

Hi
Was diagnosed with PN in October this year. Have just had my second nerve block.
Pain has seriously increased since, to the point where I can't walk, weight bearing causes pain in vulva.
Has anyone ever had trouble walking before ? Also wondering if anyone has had a pain flare lasting more than 2 weeks?
I've read they are normally 1-2 weeks so am surprised my pain is still increasing 2 1/2 weeks later.
Thankyou
Have had 3 nerve blocks and am nearly pain free !
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Violet M
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Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: New and needing info on pain flares after nerve block

Post by Violet M »

Hi Hetty,

Sorry to hear you are having flare-up. Yes, I had trouble walking before surgery. And the flare-ups after nerve blocks lasted about a month. So hang in there and see if your doc will prescribe some extra medication while you are going through this difficult time. Use lots of ice too.

Violet M
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: New and needing info on pain flares after nerve block

Post by helenlegs 11 »

Hello Hetty,
Welcome :).
Yes walking is difficult for me too. I do put mine down to piriformis problems, almost exclusively, as I know the more I do (not a great deal )the more spasmed my p muscles become which has a knock on effect with hip and groin pain. Weight bearing does have an effect too. I am usually found leaning on things rather than standing :)
take care
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Hetty
Posts: 25
Joined: Tue Nov 01, 2011 10:58 am
Location: ireland

Re: New and needing info on pain flares after nerve block

Post by Hetty »

Hi Violet & Helen
Thankyou very much it's so nice to know what other people's experiences are.
Now I don't feel quite so daft for insisting walking makes things worse !
Catherine
X
Have had 3 nerve blocks and am nearly pain free !
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: New and needing info on pain flares after nerve block

Post by helenlegs 11 »

I hope the flare settle down soon, what is your next step? Oh forgot to ask was your nerve block guided?
Take care
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
John
Posts: 14
Joined: Sun Mar 13, 2011 5:55 pm
Location: Connecticut

Re: New and needing info on pain flares after nerve block

Post by John »

Hi Hetty,

Sorry about your pain flair, I hope it subsides soon. When I had a block, my muscles went into spasm.
A muscle relaxant such a Flexeril seem to help me quite a bit.

Good Luck,
John
Hetty
Posts: 25
Joined: Tue Nov 01, 2011 10:58 am
Location: ireland

Re: New and needing info on pain flares after nerve block

Post by Hetty »

Hi Helen
Yes it was ultrasound guided. Am pleased to say its calmed down and today I was upright for 20 mins which meant a nice relaxed shower rather than a mad dash ! If I lye down for maybe 2 hours it buys me a few minutes for walking. I think of it like a banking system, time lying down is an investment for future activity !
Have my review meeting next Thursday : )
Hetty
Have had 3 nerve blocks and am nearly pain free !
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: New and needing info on pain flares after nerve block

Post by helenlegs 11 »

Good to hear Hetty, I like that terminology , 'a banking system' and can relate totally.
I would like to say that I am lying around boudoiresque having grapes fed to me so that I can go shopping, retail therapy of course rather than boring food, but I can dream, cant I?
Have laughed at the major typo's in the quick PM I sent you just now, which you have answered here anyway. Sorry :)
Take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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