Pregnant WITH PNE is ok, just don't have a vaginal birth!

This is an area to share and learn about new Medical Advances and Techniques where we can be educated and educate.
Post Reply
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Pregnant WITH PNE is ok, just don't have a vaginal birth!

Post by pianogal »

I just wanted to share this article with everyone.
http://www.springerlink.com/content/862k54455677612m/

It basically indicates that the pudendal nerve does not get any worse off during pregnancy, it only worsens through vaginal childbirth. So... pregnancy plus C section is a safe option for PNE women if you want to get pregnant.

I can vouch for that, as I got pregnant (a surprise) WHILE I had PNE (3 years pne, after my first of 2 failed pne release surgeries), and surprisingly, nothing got worse in my pudendal symptoms even though I went into it with PNE full blown. (typical pregnant symptoms of hurting feet, hips, back, etc occurred, and that was rough combined with PNE, but no increase in pudendal sitting pain happened.)

Advised by specialists, I had a planned C-section (no-contractions even!)

The C section was all super easy (easier than shoe shopping). I even lucked out with a small scar and was climbing on chairs to take pics of my baby 2 days post surgery. Actually, it was my first time with pain meds, and my PNE pain was less due to them, so I was a happy camper for 5 days after the C section.

So, if you are worried about this, rest your mind. If I can't figure out how to fix my pudendal symptoms soon, I might just get pregnant again before it's too late.
Last edited by pianogal on Sat Oct 23, 2010 5:08 am, edited 5 times in total.
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Re: Pregnant WITH PNE is ok, just don't have a vaginal birth

Post by pianogal »

oh, just wanted to add on, the case where this might not be OK would be say if you have a segmented uterus like A's Mommy...
her signature quoted says:
"History of uterine abnormality from birth (sub-septate bicornuate uterus) that was found a year AFTER I gave birth)
Daughter grew completely on left side of pelvis; born at 40 weeks
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Nerve symptoms started half way through pregnancy in 2008"

but I am guessing others could have their uterus checked out prior to getting pregnant to be on the safe side?? or if you'd already had one safe pregnancy like me you can have another with pne and be relatively ok.
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
User avatar
Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Pregnant WITH PNE is ok, just don't have a vaginal birth

Post by Celeste »

Yes! So true. Both Jessica and Sonnie from these forums went on to have their pregnancies after PNE surgery in Houston and Nantes, respectively. They had no pain during the pregnancies, no back issues from the ligaments being gone, c-sections, and healthy babies.

PNE does not affect fertility, and the pregnancy doesn't set off the nerve. The baby is quite high in the pelvis and is nowhere near the nerve until a vaginal birth gets underway.

This said, I just don't think it would be a good idea AT ALL to try a vaginal birth post op. I can attest to how hard it is to be a new mother while in PNE pain, and I think it's too big of a risk to take if you were able to get relief (which those other ladies did, too). But you know, with the medical file that any of us accumulates from trying to get to a PNE specialist, it shouldn't really be too hard to convince an OB-GYN that a c-section is a good thing. :lol:

Happy babies to all who want to go after them!
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
User avatar
A's Mommy
Posts: 447
Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
Contact:

Re: Pregnant WITH PNE is ok, just don't have a vaginal birth

Post by A's Mommy »

pianogal wrote:oh, just wanted to add on, the case where this might not be OK would be say if you have a segmented uterus like A's Mommy...
her signature quoted says:
"History of uterine abnormality from birth (sub-septate bicornuate uterus) that was found a year AFTER I gave birth)
Daughter grew completely on left side of pelvis; born at 40 weeks
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Nerve symptoms started half way through pregnancy in 2008"

but I am guessing others could have their uterus checked out prior to getting pregnant to be on the safe side?? or if you'd already had one safe pregnancy like me you can have another with pne and be relatively ok.
Hey pianogal,

Yes, I would recommend ANYONE getting their uterus ultrasounded before pregnancy by a TRAINED tech who specifically can locate any uterine abnormalities. However, my case is probably so darn rare... I mean, you can't really get more crapped on "pelvically": messed up uterus, adhesions, Asherman's, endo, and now the lovely PNE.... I am totally not discounting any one else's case though... I'm just saying I need new "plumbing" down there LOL!!!

I would love to have another baby... would absolutely LOVE it... but I'm just not sure I could go through this again even WITH my uterus having been fixed up all nice and good (septum removed, adhesions removed). I will just go one step at a time and try and get well first. I'm only 30 so if God wants us to have more children, He will make it happen. :-)

First things first, gotta get this PN UNTRAPPED!!!!
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
pomegranate
Posts: 157
Joined: Sat Sep 18, 2010 3:12 am
Location: Oklahoma

Re: Pregnant WITH PNE is ok, just don't have a vaginal birth

Post by pomegranate »

Thanks for the article! Dr. Shobieri has already told me to have a scheduled C-section should I get pregnant, and my OBGYN has no problem with that. No way would I attempt a vaginal delivery with my cranky pudendal nerve :lol:
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
Judith
Posts: 30
Joined: Sun Sep 19, 2010 5:34 am

Re: Pregnant WITH PNE is ok, just don't have a vaginal birth

Post by Judith »

A friend I met through PT had twins a year ago, C-section. Doing great! Just wanted to share a happy story.

Jude Judith
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Re: Pregnant WITH PNE is ok, just don't have a vaginal birth

Post by pianogal »

Judith, did your friend have a PNE surgery prior to the pregnancy?
Celeste, thank you for naming Sonnie and Jessica. Are they easy to contact? I'd like to ask them about the pregnancy post operatively, and make sure they weren't having PN symptoms aggravated after their births.

Does anyone know of others who have had children post PNE surgeries (PNE surgeries that worked), had C sections, and not gotten PN again from the pregnancy? (or anyone who got worse with this plan?)

Dr. Hibner recommended no surgeries after his surgery (I think he's playing it ultra safe) but I don't want to wait till another baby before getting my nerve fixed. I'd rather fix the nerve, then have a baby, if it's possible to do safely.

Studies show that pregnancy does not affect the pudendal nerve, only childbirth does. See study: http://www.springerlink.com/content/862k54455677612m/

thanks everyone. :)
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
afridinazneen
Posts: 1
Joined: Wed Mar 21, 2012 8:33 am

Re: Pregnant WITH PNE is ok, just don't have a vaginal birth

Post by afridinazneen »

Awesome!! It’s just what I need!! Thanks!............
Anne smith
Posts: 72
Joined: Wed Feb 08, 2012 12:44 pm

Re: Pregnant WITH PNE is ok, just don't have a vaginal birth

Post by Anne smith »

Hi would be pregnant mums!
As I have mentioned before I came to this foram firstly for much needed personal support, but also to follow threw some research for my monthly journal for people like me who suffered ulcerative collitus( inflammatory bowel condition).
Interestingly there was a resent post from a young sufferer of (what is still known as phantom rectal pain) who after being delivered of here baby vaginaly , after a traumatic delivery found herself cured of her pain! Yes it sounds increadable? But it does make one think? What did the trauma of a vaginal birth move in the pelvis? There has got to be a mechanical simple reason? Oh to be so enlightened!
Anne smith
Iliostomys at twenty five, just after delivery of baby
Started with rectal pain about twenty one years later
Ten years to get diagnosis, had to research myself!
Two horrific surjurys two(mend) a perennial hernia
Now with mr baranofskis team and traveling to London shortly for injections into alcocks.
Post Reply

Return to “MEDICAL ADVANCES & EDUCATION”