This is such a big help, thanks! I have gone to the hospital 7 times BEGGING for pain relief - last time my husband was in tears, begging them to put me in a coma on a respirator so I could get to sleep and some pain relief (got nothing - it was so hard for me to see my husband in such desperation too!).... sodium oxybate/GHB seems like it would have been the perfect solution.White Falcon wrote:Len, sorry to hear of your bad situation.
I have found little relief in pain killers. Can't tolerate morphine or fentanyl at all (allergic). Hydromorphone (Dilaudid) helps a little. Demeral makes me sooo stoned. As an immediate solution, see if you can get a drug called sodium oxybate. It is the only thing that gives me any relief. It puts me to sleep, so at least I get a break from the pain for a few hours. The trade name for the drug in Canada and US is Xyrem. It is also known as GHB, the date rape drug. Don't know what the status is as a prescription in Israel. I know this drug has a bad reputation as a drug of abuse, but so do all the other pain killers. Sodium oxybate was originally developed as an anaesthetic for surgery, so it will put you out of your misery for a few hours for sure!
Once I did get morphine IV, but it did not touch the pain at all, including the coccyx pain - now it makes sense to me because it is nerve pain, but at the time I was so confused how IV morphine could not touch pain. (Not one person in the ER could say that
"perhaps it is nerve pain"??? Ufffffffff....)
(Is pain management a problem in America and elsewhere? Never once could I get any sort of pain management in hospital. I was even admitted 4 times for 'pain management' but just took the meds I had with me (morphine and liquid oxycodone) - crazy.) Pain clinics are still rather rare here too and the wait is forever....