Ulcerative colitis

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc
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Lex1
Posts: 23
Joined: Sun Feb 19, 2012 7:01 pm

Ulcerative colitis

Post by Lex1 »

Hi everyone

My pudendal pain started 12m ago at the same time I developed rectal bleeding and diarrhoea. Eventually I was diagnosed with an inflammed rectum (proctitis likely Ulcerative Colitis)

The proctitis was treated with Asacol tablets, it took about 6 months to control the inflammation. However the pain persisted eventually worsening. Sitting 8-12 hrs a day and exercising heavily probably didnt help either. I am convinced that this caused a neuritis of my pudendal nere, specialist Gastroenterologist didn't think so. Having said that she didnt know what the pain was.

Is anyone out there aware of a link between Ulcerative Colitis and PN? Or of Any studies linking the two?

Doesn't make a difference overall I know, I just need the PN treating. Just interesting.

Regards

Lex
Struggling 37 year old male, Pain started Jan 2011
Unable to work since August 2011
Pudendal neuralgia diagnosed October 2011
Waiting 1st Of three CT guided injections!
Struggling more week by week
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Violet M
Posts: 6651
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Ulcerative colitis

Post by Violet M »

Lex, I've been following the PN peer reviewed literature for 7 years now and don't remember any studies linking the 2 but it's possible there's something out there. Have you checked out pubmed for peer-reviewed literature on the subject?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Ray P.
Posts: 248
Joined: Mon Sep 20, 2010 5:22 pm

Re: Ulcerative colitis

Post by Ray P. »

I heard that a vegan diet does wonders for Ulcerative Colitis.
Anne smith
Posts: 72
Joined: Wed Feb 08, 2012 12:44 pm

Re: Ulcerative colitis

Post by Anne smith »

Hi lex
I don't know if you have read any of my posts, but one of my reasons ( as well as the much needed support was to gather data about the high incidence of p.n.e with people who have had iliostomys! About seventy present of these people suffered with u.c I consider that the incidence of p.n.e is due to the life saving surjury? Your e. mail gives an interesting slant. Hope this is of interest
Anne smith
Iliostomys at twenty five, just after delivery of baby
Started with rectal pain about twenty one years later
Ten years to get diagnosis, had to research myself!
Two horrific surjurys two(mend) a perennial hernia
Now with mr baranofskis team and traveling to London shortly for injections into alcocks.
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