Anyone worse after PT?

Trigger Point injections, Myofascial Massage techniques, and many more.
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carolynm
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Anyone worse after PT?

Post by carolynm »

Hello friends,

Had a visit with a pelvic floor specialist PT here in Denver (3.5 hr from my home, not so convenient)...and I felt so terrible last night after the appt. She did a lot of internal work, esp at the obturator internus (interesting, my PT at home said she couldn't "get" to that muscle). Everything on my right side was in spasm. But not I have worse coccyx/rectal pain and the urinary urgency last night was unbearable. Had to take 10 mg total of Valium within an hour's time to get it to settle down.

I haven't had surgery yet, so wondering for those who have not (it's not an option for me with my two young children to tote around)...do you get worse with your PT treatments?

thanks,
cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: Anyone worse after PT?

Post by Faith »

Yes, the first PT I ever went to made me flare up after every session. She is also the PT that did the high velocity manipulation on my SI which made me unable to sit. I have seen 5 PT's on my journey so far. And some are more aggressive than others. They often say that PT may cause a flare post treatment but that it should decrease after 48 hours. If you go back to this PT you need to tell them what happened and ask them to be a little more gentle next time. The 3.5 hr drive probably didn't help either. Is there no one any closer for you? So sorry... I know it's frustrating. ARe you saying you won't have any kind of surgery as long as your kids are small to carry around? If this if your first try with PT keep at it (or switch to a less agressive one and keep at it) because you need to give it a try before you even think about surgery. I did it for over a year and am going back again tomorrow after my botox (which still has me flared almost 2 weeks later by the way). I am going to give everything my best shot before I seriously consider surgery. That's my opinion at least.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Anyone worse after PT?

Post by nyt »

My first try at PT I flared terrible and it took forever to settle down and each visit it made me worse. She kept telling me it was just myofascial pain but my last visit to her she worked so aggressively internally that I could not press the gas or break pedal on the car because it had made my right leg so weak and painful. After about 8 visits I quit going to her. I am trying a new pelvic floor PT this time after my surgery and she is extremely gently. We have only done internal rectal work once for just a few minutes. She feels that if I flare it should only be for a couple of hours, if more than that, than we were too aggressive. For me personally, I think less is more for those of us with chronic pain. If the pudendal nerve is entrapped and she is working agressively on the obturator internus muscle she is just going to make you worse because the nerve is entrapped and all she did was pull and tug on it. If she won't listen to you and be less aggressive, don't let her work on. Learn from the rest of us on this forum who got worse at PT because they weren't willing to listen.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
jacko
Posts: 26
Joined: Tue Nov 23, 2010 11:48 pm

Re: Anyone worse after PT?

Post by jacko »

Hi

I had a few sessions of internal trigger point treatment and It caused me to have urinary frequency which I didnt really have much of a problem with prior to the treattment. It did lessen after a few days and my other symptoms did to seem improve a bit. It also happended after each subsequent session so I decided not to continue because of the urinary issues.

Thats just my expereince and I didnt give it that long. I have been doing various stetches mostly piriformis for the last 6 months and overall Ive seen some improvement of symptoms but its all up and down with this illness and does vary fromm week to week.

Good luck with your treatment if you continue.

Regards,


Jacko
flyer28
Posts: 244
Joined: Fri Mar 25, 2011 11:29 am

Re: Anyone worse after PT?

Post by flyer28 »

I am after 2 sessions of PT and feel that I am worsening. It might be only temporary but I intuitively feel that some stretches especially in groin area, that my PT made might be potentially dangerous. Still think that we need more trigger point release, intrarectal massage of pelvic muscles than stretches. I will consult this with my PT who is underestimating pudendal issues, I guess.
summer 2009 - episodic post ejaculatory pain,
early 2010- major flare-up, chronification
february 2011 - ESCW wave. major flare-up, lasting 5 months
february 2012 - diagnosed CPPS with irritation of pudendal nerve, hypog. plexus block
june 2012 - dorsal nerve block, no relief
2013 - starting PT with moderate results
2014-2017 better periods interchanging with heavy flare ups
2018 first long remission (several months)
2019-2023 most of the time almost assymptomatic with cca 2 flare ups yearly
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