ADVOCATE: Become a part of a DOCUMENTARY on CPP/PNE

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A's Mommy
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Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
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ADVOCATE: Become a part of a DOCUMENTARY on CPP/PNE

Post by A's Mommy »

Hello everyone,

I implore you to check out our new website at http://www.thepelvicmessenger.org

Please click on the BLOG for a downloadable .pdf to submit videos for our documentary project.

HEALING THOUGHTS AND PRAYERS TO ALL,

A's Mommy

http://www.thepelvicmessenger.org
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: ADVOCATE: Become a part of a DOCUMENTARY on CPP/PNE

Post by nyt »

What a great idea and project!! I am curious though, why is the cut-off age 35 years old. There are many of us that pelvic pain didn't start until after that. For example, me. Mine started after my hysterectomy and bladder sling at the age of 43.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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