Yes, Violet, similarly, although my pelvic floor muscles tighten and cause pain, I believe that the nerve is causing that through entrapment somewhere along the line. With the scans now showing a thickening of the ST ligament and pain in the vicinity of the incision, the probability of re-entrapment through scar tissue growth is a reality. Unfortunately in Nantes they don't consider re-do ops. We really have few options to be in good hands! This is the dilemma of this condition!
Linkey
Getting a diagnosis
Re: Getting a diagnosis
Well, I guess redo's aren't easy because it's hard to locate the nerve in all that mass of scar tissue. I read that Dr. HIbner has to use electrial stimulation to locate the nerve and it's a long tedious surgery but thankfully one he is willing to try. Did you see his published article on redo's? I think it's still linked to on the homepage.
I certainly hope yours is successful if you decide to go that route.
Violet
I certainly hope yours is successful if you decide to go that route.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Getting a diagnosis
Yes, I read his published paper and discussed it with him. He seems to be a strong advocate of the re-do surgery and says he's seeing good results after tweaking the process. He trained under Prof Roberts, the surgeon who did my op in Nantes and has the highest respect for him. By modifying Prof Roberts techniques, he is offering hope to people who may have re-entrapments.
Linkey
Linkey