New Person with Pudendal Nerve Disorder

[Elmwood]

So you've found relief from pain with the Klonepin? Where was your pain again? I had success with Lyrica (for my scrotal tingling) but have recently had some pain in buttocks when sitting and even lying down. Looking for some things that may help.

Thanks

[konedog4]

Before using Clonazepam, my pain level was such that I could not comfortably sit for more than 20 minutes using a cushion. I would get so much pain in the perineum area. With 1 mg Clonazepam, I can sit on cushions comfortably for up to an hour or more. It makes my life much more enjoyable and bearable.

kone

[Elmwood]

Interesting. I had a nerve block yesterday but haven't had any relief yet. Guess it could take up to 2 weeks. The pain doctor I see is a know it all so I don't think he'll be receptive to any medicinal suggestions I may have but my PC doctor is pretty good so maybe he will. Pain while sitting is new for me and its in my buttocks. No matter my sitting position it causes pain wherever my buttocks are touching the seat etc. I've tried cusions and rolled up towels while driving but they actually caused numbness or hurt even more. Thanks for the info

[oldcarguy]

Have you tried alprazolam (xanax)? It's in the same class of drug. It seemed to help me somewhat but I never tried taking it daily but only every once awhile to sleep. I realize it's addictive as well but if it would help if taken regularly I would try it.

[konedog4]

Xanax makes me very sleepy. It probably does the same thing as Clonazepam, but I do not want to get addicted to Xanax. I believe when the time is right I can get off of Clonazepam by a slow taper. I was on Xanax once for anxiety and had a real hard time getting off of that.

kone

[konedog4]

Have appointment set with Dr. Kirk Andrews in Canada for September 9th week. I will post results of that therapy and the experience.

kone

[Violet M]

Kone, I tapered off clonazepam without any difficulties after surgery. I think if you just take it slowly it shouldn't be a problem.

Best,

Violet

[konedog4]

Thanks Violet. I know it can be a problem for some people. Websites are devoted to helping people get off benzodiazepines, of which, Clonazepam is one. It is about the only thing that really helps reduce the discomfort and tightness in my perineum,o I will continue to take it until I get better.

kone

[konedog4]

Had a 3T MRI taken in Saint Louis Park, MN. Awaiting results.

[konedog4]

My recent 3T MRI showed no abnormalities. I was actually hoping it would show an area of damage or entrapment to pin down a specific diagnosis. Frustrating.