Dr. Tibet does not post on this site, but he is one of our Physician Advisors.
I don't have a Facebook account, either
Best regards,
Karyn
newcomer
Re: newcomer
Hi Greg,
Dr. Tibet does not post on this site, but he is one of our Physician Advisors.
I don't have a Facebook account, either
Best regards,
Karyn
Dr. Tibet does not post on this site, but he is one of our Physician Advisors.
I don't have a Facebook account, either
Best regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
-
helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: newcomer
Hi Greg,
Just wanted to echo Violets words and thanks for your sterling efforts and help as a Pn cruasder I know you have helped so many.
Keep us up dated with your recovery Molly. I do think that the lengthy surgery you had may mean a longer recovery period but as Greg said everyone has a different situation so we can't really be comparing one against another.
take care,
Helen
Just wanted to echo Violets words and thanks for your sterling efforts and help as a Pn cruasder
I know you have helped so many.Keep us up dated with your recovery Molly. I do think that the lengthy surgery you had may mean a longer recovery period but as Greg said everyone has a different situation so we can't really be comparing one against another.
take care,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: newcomer
Truer words couldn't be spoken ....helenlegs 11 wrote:as Greg said everyone has a different situation so we can't really be comparing one against another
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: newcomer
Thank you, helenleggs. I'd meant to come back sooner to check on this thread. I need any kind comments I can get these days. Life's been very tough for me as of late.Hi Greg,
Just wanted to echo Violets words and thanks for your sterling efforts and help as a Pn cruasder I know you have helped so many.
To everyone:
I just looked at my signature on here and had to laugh. When I have time I need to make some edits to my profile.
Greg
Had surgery in Nantes, France in 2001 with Professor Robert. I advocate physical therapy with PTs who specialize in the pelvic floor. I also advocate injections to help diagnose PN and I am in favor of having PN surgery to release the nerve when the diagnoses points to an entrapped nerve.
Re: newcomer
Hi Greg,
Sorry it's been rough for you lately. Is it PNE acting up or other stuff?
I agree -- your signature is a bit outdated.
Violet
Sorry it's been rough for you lately. Is it PNE acting up or other stuff?
I agree -- your signature is a bit outdated.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.