Well I have taken the first steps to go for surgery in France Ellie, with Professor Robert. After all his team were almost the ones who instigated this type of surgery and like Dr Chambi, Professor Robert is a neuro surgeon.
I have found that they can't do anything apart for pudendal decompression in UK, so USA and France are the only options and it is just a hop and a skip across the channel
It is FAR cheaper too
I was just like you, I didn't think of pudendal issues at all it took me 2 years to make that connection, when I came to this site tbh. Well again hadn't even heard about it (or bleedin' piriformis come to that )
However, a PT realised that I had a piriformis problem and I already knew that the scaitic nerve was involved, so things started to fall into place after that.
The more you learn, i.e. which nerves serve which areas the more my list has grown. Trouble is you can tend to sound like a hypochondriac diagnosis seeker to some then; just because no one else seems to be interested in pelvic nerves up here . . . . . . I hope professor Robert agrees to the op.
I was even thinking that I should just to concentrate on my pudendal symptoms to make him (well them, it's a team effort) more keen to go ahead but realised how stupid that would be. I have heard (only second hand) of one lady who has had the decompression surgery with this team at piriformis level. I'm sure there must be more.
I have written to Dr. Riant in Nantes who is one of the team who will examine me (Dr Labatt is the other) They will still insist on a pudendal block and I think others too.I hope I 'pass' their tests
I do
know they have decompressed cluneal nerves as well as many, many pudendal of course.
I still have to be lovely to my husband and convince him to sell his motorbike. You have
no idea what a wrench this will be for him. I will have to promise to buy him one again once I can work after my undoubted recovery.
I have told a few people about my plans now and it is all seeming a bit more real and achievable. The whole thing has really got me down so much that I actually didn't think I deserved to be helped, in fact as soon as I typed that I still have doubts.
Got to pick myself up and out of that silly mindset.
Oh well its in black and white now
. . and anyway the summer is almost over, what does he need a motorbike for when it's too cold and wet to ride
doubt his smile will be as wide as this tho'
Thanks for your lovely message,
H x
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
, including the pudendal... He said to me.. "It was awful Ellie, it was awful". am sure, by the way I feel that he will find much of the same on the right side. I sure do wish this was over with becaue I am miserable... 5 years is enough of this... I know many have suffered longer than I . Dr. chambi told me that it would take a year for the sciatic nerve to heal and up to 3 for the pudendal and others... I am just so grateful to have found him... I asked him how he released the nerves compared to how Dr. Antalok did them.. He said they decompress the nerves away from the spine, meaning distally, Dr. Chambi realeases them proximally, meaning along down the spine.. oh, yes, my P muscle was growing into my sciatic nerve, My sciatic nerve was misplaced and they found it electrical stimulater..... enough of that.... Elie
