PGAD - persistent genital arousal disorder
Re: PGAD - persistent genital arousal disorder
In response to some people who have asked whether men can get this - I think yes, and I have been experiencing something similar for twenty years or so, and even before I had the classical sitting pain and was left to wonder what was wrong with me. The feeling is not constant, it comes and goes, sometimes mild and other times strong, and it is very uncomfortable and painful. I have to constantly massage the perinneal/genital area to relieve the symptoms, and it is very embarassing to do it when I am outside home. It is at a peak for about two hours following bowel motion. Physical stress like long walks, lifting or bending will almost always bring on this symptom and will usually last for a few hours. Strangely enough, taking alkaline citrate sometimes helps to reduce the symptoms for me.
PN symptoms since 1988. Full blown PN and sciatica since 2004. Diagnosed with sacral arachnoid cyst S1-S4 in 2006.
2008- 2015: Conservative management of symptoms by reduced sitting, avoiding physical strain, meditation etc.
2015-Jun 2019 Bedridden due to pain, wasting and weakness.
Jul 2019- Trying to find my way out. Scheduled for likely sacral cyst and cervical meningocele surgeries in feb 2020.
2008- 2015: Conservative management of symptoms by reduced sitting, avoiding physical strain, meditation etc.
2015-Jun 2019 Bedridden due to pain, wasting and weakness.
Jul 2019- Trying to find my way out. Scheduled for likely sacral cyst and cervical meningocele surgeries in feb 2020.
- helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: PGAD - persistent genital arousal disorder
http://www.tvguide.com/News/Persistent- ... 59179.aspx
If anyone reads the comments!!!! sorry can't comment far too !!! Thing is, if it is pudendal related, how can I be mad at these people, 5 years ago I would possibly have had similar ideas.
Helen
A bit more of the show but no mention of anything medical or pudendal. Annoying!
http://www.jeffprobst.com/posts/2620_sh ... index.html
If anyone reads the comments!!!! sorry can't comment far too !!! Thing is, if it is pudendal related, how can I be mad at these people, 5 years ago I would possibly have had similar ideas.
Helen
A bit more of the show but no mention of anything medical or pudendal. Annoying!
http://www.jeffprobst.com/posts/2620_sh ... index.html
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: PGAD - persistent genital arousal disorder
Couldn't get those links to work, Helen. Is it just me?
Sunil posted a newspaper article in a different thread but I wanted to discuss it here.
http://tinyurl.com/a7g3d3v
The article makes this claim: We now know that a chemical imbalance in the brain marked by high dopamine levels accounts for the distressing problem known as Persistent Genital Arousal Disorder where a woman feels perpetually aroused - a real nightmare for the women concerned.
How do "we" know this? There are one or two scholarly articles that I can find that suggest dopamine imbalance may be the case for one or 2 women studied. I know of a lot more cases than that, of women who had PGAD from PNE.
Violet
Sunil posted a newspaper article in a different thread but I wanted to discuss it here.
http://tinyurl.com/a7g3d3v
The article makes this claim: We now know that a chemical imbalance in the brain marked by high dopamine levels accounts for the distressing problem known as Persistent Genital Arousal Disorder where a woman feels perpetually aroused - a real nightmare for the women concerned.
How do "we" know this? There are one or two scholarly articles that I can find that suggest dopamine imbalance may be the case for one or 2 women studied. I know of a lot more cases than that, of women who had PGAD from PNE.
Violet
Last edited by Violet M on Tue Jan 22, 2013 4:46 am, edited 1 time in total.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: PGAD - persistent genital arousal disorder
No, its not just you Violet. This link works - I hope.
Re increased dopamine levels being associated with PGAD - it does seem to be clear that some cases are associated with dopamine imbalance. But I think the overall picture is far from clear. I've found one case where reducing dopamine levels with Varenicline has caused the symptoms to go - but also, paradoxically, an anecdotal account of one case where a women developed PGAD when she started taking a prescription dopamine agonist (for Parkinson's).
However I think we do already know that damage to the pudendal nerve can cause this symptom.
Re increased dopamine levels being associated with PGAD - it does seem to be clear that some cases are associated with dopamine imbalance. But I think the overall picture is far from clear. I've found one case where reducing dopamine levels with Varenicline has caused the symptoms to go - but also, paradoxically, an anecdotal account of one case where a women developed PGAD when she started taking a prescription dopamine agonist (for Parkinson's).
However I think we do already know that damage to the pudendal nerve can cause this symptom.
- helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: PGAD - persistent genital arousal disorder
Thanks Calluna
![Smile :)](./images/smilies/icon_e_smile.gif)
Precisely! I just wish this fact was mentioned and clinically associated with this problem more often. It is only sensible, medically to accept this.calluna wrote: However I think we do already know that damage to the pudendal nerve can cause this symptom.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: PGAD - persistent genital arousal disorder
Today, whilst browsing through a ‘glossy’ magazine in a coffee shop here in the UK, I read an article about G-spot injections. Yes, that’s right ! Apparently one of the newer treatments now available and proving popular is to have this erogenous zone pumped up with botox or something similar, pretty much guaranteeing ‘fireworks’ every time.
To be honest, I generally felt rather saddened that women would go to such lengths, but the final paragraph also made me very angry, mostly because of the flippant way it was written, and I quote: “G-spot injections do not come without risks though. Side effects reported include infections, urine retention and even – wait for it – a sensation of constant sexual arousal.”
Perhaps this procedure should come with a warning that potential customers firstly read a few of the posts on this forum and then decide whether the fireworks are really worth the risk. Whatever next !
To be honest, I generally felt rather saddened that women would go to such lengths, but the final paragraph also made me very angry, mostly because of the flippant way it was written, and I quote: “G-spot injections do not come without risks though. Side effects reported include infections, urine retention and even – wait for it – a sensation of constant sexual arousal.”
Perhaps this procedure should come with a warning that potential customers firstly read a few of the posts on this forum and then decide whether the fireworks are really worth the risk. Whatever next !
Re: PGAD - persistent genital arousal disorder
You are right, Susan, the way it is written, some unsuspecting people might see the words "sensation of constant sexual arousal" and think that's a good thing. How sad...Susanjane wrote: “G-spot injections do not come without risks though. Side effects reported include infections, urine retention and even – wait for it – a sensation of constant sexual arousal.”
Perhaps this procedure should come with a warning that potential customers firstly read a few of the posts on this forum and then decide whether the fireworks are really worth the risk. Whatever next !
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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- Posts: 15
- Joined: Wed Jan 30, 2013 1:55 am
Re: PGAD - persistent genital arousal disorder
Hello,
Has anyone tried and had success with taking Bupropion (marketed as Wellbutrin, Zyban, Voxra, Budeprion, Prexaton, Elontril or Aplenzin)? That is what my Doctor gave me and I am hesitant to try it. I want the PGAD symptoms to go away so badly but I am so afraid this won't work and I really am uneasy taking prescription drugs. I showed the Dr a list of drugs that others have had success with but she went with this Wellburtin.
Any thoughts would be much appreciated.
I am also going to try a PT that specializes in the pelvic floor...hoping so badly for relief.
All the best,
Jenny
Has anyone tried and had success with taking Bupropion (marketed as Wellbutrin, Zyban, Voxra, Budeprion, Prexaton, Elontril or Aplenzin)? That is what my Doctor gave me and I am hesitant to try it. I want the PGAD symptoms to go away so badly but I am so afraid this won't work and I really am uneasy taking prescription drugs. I showed the Dr a list of drugs that others have had success with but she went with this Wellburtin.
Any thoughts would be much appreciated.
I am also going to try a PT that specializes in the pelvic floor...hoping so badly for relief.
All the best,
Jenny
Re: PGAD - persistent genital arousal disorder
Not tried bupropion, nor have I heard of anyone who has - but I can see why your doctor thinks it might help. This stuff alters dopamine levels, and there are documented cases where this has helped with PGAD. Definitely worth a try, I'd say! Your doctor seems to have been doing her research and thinking about what might help, I would be quite impressed by that. And she's picked a well-understood medication, which is always a good thing, if possible.
With this condition, what works, what doesn't, and why - we are still finding out.
All of us would much prefer not to be taking any meds at all - but it comes down to quality of life, really.
With this condition, what works, what doesn't, and why - we are still finding out.
All of us would much prefer not to be taking any meds at all - but it comes down to quality of life, really.
Re: PGAD - persistent genital arousal disorder
double post
Last edited by Happs on Tue Mar 12, 2013 10:19 pm, edited 1 time in total.
Male
PGAD started in 2007
Many Pudendal Nerve blocks
Pelvic Floor Physical Therapy
Ganglion Impar Nerve Block
Dorsal Penile Nerve Block
Dorsal Penile Nerve block combined with Pudendal Nerve Block. Worked! Only for 3 days
Left Sided Pudendal Nerve Decompression Surgery TG Approach Feb 2013
Symptoms still going strong a few weeks after surgery. Expected. Hoping for relief in the coming months/years.
Will decide on right sided PN Surgery based on results of left side surgery.
PGAD started in 2007
Many Pudendal Nerve blocks
Pelvic Floor Physical Therapy
Ganglion Impar Nerve Block
Dorsal Penile Nerve Block
Dorsal Penile Nerve block combined with Pudendal Nerve Block. Worked! Only for 3 days
Left Sided Pudendal Nerve Decompression Surgery TG Approach Feb 2013
Symptoms still going strong a few weeks after surgery. Expected. Hoping for relief in the coming months/years.
Will decide on right sided PN Surgery based on results of left side surgery.