I can ask my PCP, he's been very helpful with my whole ordeal, though he doesn't know anything about PN, he never even heard of it until I enlightened him, he has since researched it and read up about, etc. I will ask him and see what he says though I'm sure he never heard of a Potter MRI so I'm not sure if he'd be comfortable ordering it. I'm not treating with any other doctors at the moment, no pain management or anything except Dr. Coleman for my hips. I did ask Dr. Coleman if he would order one for both my hips as well as pelvis but he doesn't think it's necessary....I'm going to email Dr. Conway and see what he says, it can't hurt.
Shana
Which is the most reliable test for pudental nerve problems?
Re: Which is the most reliable test for pudental nerve probl
'08 diagnosed with vulvar vestibulitis
'09 vestibulectomy-Dr. Goldstein-failed
'11 right labral repair and release-Dr. Coleman
2/10-8/12 severe depression, minimal dr appointmen
4 different physical therapists '08-'12 no improvement whatsoever
'13 pudendal nerve blocks-Dr. Chapman
More PT
Dr. Conway officially diagnosed PN/PNE 7/13
9/13 Bilateral hip repair Dr. Coleman
10/13-5/14 Major Depression, no dr appointments
More PT
6/14 Dr. Hibner confirmed diagnosis
Looking for help..hoping for answers
'09 vestibulectomy-Dr. Goldstein-failed
'11 right labral repair and release-Dr. Coleman
2/10-8/12 severe depression, minimal dr appointmen
4 different physical therapists '08-'12 no improvement whatsoever
'13 pudendal nerve blocks-Dr. Chapman
More PT
Dr. Conway officially diagnosed PN/PNE 7/13
9/13 Bilateral hip repair Dr. Coleman
10/13-5/14 Major Depression, no dr appointments
More PT
6/14 Dr. Hibner confirmed diagnosis
Looking for help..hoping for answers
Re: Which is the most reliable test for pudental nerve probl
Hi Shana,
Glad to hear you have some support from your PCP. In regards to the MRI, it may be helpful if you presented him with this:
Hollis G. Potter, MD
Chief, Magnetic Resonance Imaging
Professor of Radiology
Weill Medical College of Cornell University
The address is as follows:
Diagnostic Radiology
Hospital for Special Surgery
Magnetic Resonance Imaging
535 East 70th Street
New York NY 10021
Appointment Desk
Tel 212-774-7296
Fax 212-774-7295
The script should be as follows.
MRI of the Pelvis
Bilateral Pudendal nerve
1) From ischial spine to Sacro Spinal ligament beneath Sacrotuberous ligament and to the Alcock's canal.
2) Dorsal Nerve of the clitoris or penis especially passing through the pubic bone.
To be reviewed by Dr. Hollis Potter.
Please have it faxed to 212-774-7295 by your doctor and then call MRI department at 212-774-7296 to schedule an appointment.
Glad to hear you have some support from your PCP. In regards to the MRI, it may be helpful if you presented him with this:
Hollis G. Potter, MD
Chief, Magnetic Resonance Imaging
Professor of Radiology
Weill Medical College of Cornell University
The address is as follows:
Diagnostic Radiology
Hospital for Special Surgery
Magnetic Resonance Imaging
535 East 70th Street
New York NY 10021
Appointment Desk
Tel 212-774-7296
Fax 212-774-7295
The script should be as follows.
MRI of the Pelvis
Bilateral Pudendal nerve
1) From ischial spine to Sacro Spinal ligament beneath Sacrotuberous ligament and to the Alcock's canal.
2) Dorsal Nerve of the clitoris or penis especially passing through the pubic bone.
To be reviewed by Dr. Hollis Potter.
Please have it faxed to 212-774-7295 by your doctor and then call MRI department at 212-774-7296 to schedule an appointment.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Which is the most reliable test for pudental nerve probl
Karyn,
Thanks for all your help, I truly appreciate it. This medical journey has been a long and hard one (and I'm not done yet!!)With most of my medical providers having no clue how to help me or guide me it's great to have a place like this where total strangers reach out and help and guide one another.
Thanks a bunch!
Shana
Thanks for all your help, I truly appreciate it. This medical journey has been a long and hard one (and I'm not done yet!!)With most of my medical providers having no clue how to help me or guide me it's great to have a place like this where total strangers reach out and help and guide one another.
Thanks a bunch!
Shana
'08 diagnosed with vulvar vestibulitis
'09 vestibulectomy-Dr. Goldstein-failed
'11 right labral repair and release-Dr. Coleman
2/10-8/12 severe depression, minimal dr appointmen
4 different physical therapists '08-'12 no improvement whatsoever
'13 pudendal nerve blocks-Dr. Chapman
More PT
Dr. Conway officially diagnosed PN/PNE 7/13
9/13 Bilateral hip repair Dr. Coleman
10/13-5/14 Major Depression, no dr appointments
More PT
6/14 Dr. Hibner confirmed diagnosis
Looking for help..hoping for answers
'09 vestibulectomy-Dr. Goldstein-failed
'11 right labral repair and release-Dr. Coleman
2/10-8/12 severe depression, minimal dr appointmen
4 different physical therapists '08-'12 no improvement whatsoever
'13 pudendal nerve blocks-Dr. Chapman
More PT
Dr. Conway officially diagnosed PN/PNE 7/13
9/13 Bilateral hip repair Dr. Coleman
10/13-5/14 Major Depression, no dr appointments
More PT
6/14 Dr. Hibner confirmed diagnosis
Looking for help..hoping for answers
Re: Which is the most reliable test for pudental nerve probl
You're welcome, Shana! 
I couldn't agree more!
I couldn't agree more!
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Which is the most reliable test for pudental nerve probl
I would like to get this testing done as well with Mr. Filler would you have his contact info ?
-
stephanies
- Posts: 683
- Joined: Mon Oct 25, 2010 3:07 am
Re: Which is the most reliable test for pudental nerve probl
Dr. Filler's website is www.nervemed.com, if you are interested in his MRN. Dr. Hollis Potter does a 3T MRI and her contact info is listed on earlier posts on this thread.
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.