pne symptoms?

[momof3bigguys]

im new here and was wondering if vaginal discharge with pne a common symptom??

[Anne smith]

Hi this sound illogical , and I have never had it since! But when I first started with my pne symptoms I had a very heavy discharge(with no pathology (no infection no thrush ) ? ?
Anne smith

[momof3bigguys]

wow thats EXACTLY how this all started!!! i thought i had a yeast infection!!?? NOPE after months of testing, tons of cultures everything was negitive!!!! at one point i wished something ,anything would come back positve just so i could find out what the heck this was and nothing was positve for anything!!..i still have it, but not like it was in the beginning..i really hope that the emg that i am going to have points them in this direction,bc i really think this is what i have!! if you dont mind was intercourse an issue for you? its not bad during ,but afterwards its soo painful for at least 1-2 days? it burns and is so painful..the burning is just horendious!!!! all the time!! also i get itching spells it comes and goes? feels JUST like a yeast BUT its not at all! ??

[calluna]

Hi - just wanted to say, first, there is absolutely no way to tell whether it is PNE just from symptoms. There needs to be either a very specific MRI, or else surgery - basically, somebody needs to look and see.

Now, with regard to PN.

No, vaginal discharge is not a symptom at all. As Anne says, there is no logical reason why this would happen. Just a thought though - have you ever had any gynae surgery involving mesh?

Anne did they ever sort out why this happened to you?

[Meliora]

Nerve irritation or inflammation can cause itching, even vaginal itching. As for the discharge, I can only make guesses. Hormonal changes, immune response, etc (you stated cultures were negative). Sometimes, a cause cannot be found. That is even more frustrating.

In regards to intercourse, yes I have had lots of pain. Days of pain, like yourself. 

I hope your testing leads you to answers/treatment. I know its very difficult waiting.

[momof3bigguys]

i had an explortory surgery done this past april with a urogyn and a endometreosis specialist as i had a rectocele back in 2005...no rectocele and no mesh so the discharge is just baffling?? it came with this awful buring sensation in the vaginal area!..i have spent the last 7 1/2 months going from dr to dr with no answers..i did have an MRI done 2 weeks ago that showed i have 2 bulging dics one of them are actually a protruding disc, with minamal nerve involment, but there is no nerve encrochment?

i have had a LONG histroy of extensive endometreosis i have had at least 8-9 surgeries to deal with the endo, finally at the age of 29 i had a hysterctomy,followed by a horrific complacation that required a massive blood transfusion, the vaginal cuff was closed inproperly long story short i had 2 surgeries to fix it..its been a long 17 yrs with endo. when i had my surgery done in april it was with a uyrogyn and my endo specialist...this was the FISRT time in 17yrs i dont have endo...all they found was bad adheshions
so bad that the adheshions actually fused my appendix to my one and only ovary..;( i almost lost my appendix and my ovary that i have been holding on to so
dearly for 10 yrs!!!

what other type of MRI do i need to have done to find the pudendal nerve?? who and what dr does that?? im seening a neuromuscular dr for my EMG and skin biopsy would she recommend a different type of MRI?? im so scared they are never going to figure this out and i have to live like this!! im just as MISERABLE as i can be..;( at this point i wish it was endo again as horriable as endo is its NOTHING like this !! this is just AWFUL!!!

[Violet M]

Vaginal discharge with PN isn't common. I know one woman who had it but she also had persistent genital arousal disorder so it might have been associated with that.

For nerve imaging you could have the MRN http://www.neurography.com/about-mr-neurography or the 3TMRI using the Hollis Potter protocol. http://www.pudendalhope.info/node/58#NY She's in New York but some people have been able to get their radiologist to get the protocol from her and have it done locally. The question is can that radiologist read it was well as Dr. Potter can? -- not sure.

Violet

[Anne smith]

Hi
No I never got to the bottom (so to speak,ha ha) I certainly didn't find it funny at the time) when I came back from the holiday I which the problem started I made an appointment with our hospitals s. t . D clinic! As you can imagine it wasn't easy to go there but the specialist in charge there was Dutch a gentleman it made it easier for me! He carried ou t several tests which proved negative for everything short of a minor yeast infection.
Now as descused whithout any dought my immune system was well compromised?? I was aware my son was dabbling with drugs! I am sure you can imagine my distress!( due to divorse I didn't have the support of his farther, and I was traveling to a far of place! All in all when you put it all together it makes for intereasting reading! What a complex complaint p.n.e is let's hope in the next decanede We might learn more
Anne

[helenlegs 11]

Hi there,

I have no idea about a discharge either but I do know that endo can result in scar tissue that may cause pudendal nerve entrapment in that scar tissue. I know of a lady who has had pudendal decompression surgery through endo.
The burning sensation you describe could be a symptom of PN of course but if it was it wouldn't lead to any discharge. I hope you can find some answers.
Take care,

Helen