accountability

Trigger Point injections, Myofascial Massage techniques, and many more.
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Cora
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accountability

Post by Cora »

This is a cross post of a discussion that I brought up on HP. So I hope it can stimulate some discussion here. Ok charlie, Ezer, counting on you lads.

Help me too please and decipher this study. I'm rusty. Is this the one you mentioned before ?


Here is the link to the study:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2872169/

that Rhonda and Mary Pat did and I think it was the one and only one referenced or that anyone can reference right now. The point that I am try to make after much deliberation and I plan on writing about it more, is that regardless of even if some studies are now being done, there needs to better documentation of outcomes. Follow up of patients 3,6,12 months after being discharged to see how they are doing. Are they going to another PT? are they in a pain management clinic? What is there level of functionig like? Are they seeing other doctors? Are they considering other treatments? Communication and follow-up of outcomes is necessary for many reasons: to understand the benefit short term and long term of PT. What happens to patients aftewards, and hopefully too there is more communication between the specialties. Right now, people are jumping around like fleas between doctors, not knowing what to do and the cost is alarming on all fronts. I have been a pt patient on and off for four years In my case, it is a pain management tool. So, that should be documented. And then when you stop pt, you should be followed up. ANd if you don't stop PT- it should be documented as to how often you come in for maintenance. And then those studies should be published. And then they should look at what caused the fall-out. Was it cost? was it lack of progression in PT? was it that they got better? was it that they were referred for PNE testing ? That is how a body of knowledge is developed, published and disseminated into the wider field of [/b]medicine so primary doctors can read about it, obs/uros can read about it.

THe role of PT has to be defined at some point by measurable outcomes. That's too the only way we have hopes of insurance covering it more as well as getting disability claims. I plan to write more about this in a blog. But that's where I'm coming from . As a nurse and all other medical professionals, you are obligated to document your outcomes and you can't go around saying 'I cure x % of people without follow-up. It just can't be done that way. Yes there is hope. But let's get more information out there.
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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Charlie
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Re: accountability

Post by Charlie »

Your right that is the only controlled study that patients have to go on when embarking on myofascial type PT treatment for pelvic pain. It was not even a full scale study but rather a small scale feasibility study. The patients were tracked over a very sort amount of time. There is no evidence which can prove myofascial type PT is a long term effective treatment for pelvic pain. It's quite disconcerting really.

These parts stood out
The overall GRA response - moderately or markedly improved - was 57% in the physical therapy group and 21% in the massage group. Of interest, a difference between treatment arms was present only in the interstitial cystitis subjects. Global massage was effective for both groups of patients, but only myofascial physical therapy was effective for BPS/IC.
No significant differences in secondary endpoints (pain, urgency, frequency, O’Leary Sant scores) were noted, though trends in all showed improvement. Blinding was attempted, but unsuccessful.
http://www.urotoday.com/49/browse_categ ... stpbs_edit
http://www.urotoday.com/index.php?optio ... id=2229609
Cora wrote:As a nurse and all other medical professionals, you are obligated to document your outcomes and you can't go around saying 'I cure x % of people without follow-up. It just can't be done that way. Yes there is hope. But let's get more information out there.
Cora
I agree
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
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Violet M
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Re: accountability

Post by Violet M »

Here is the clickable link to the article Cora posted:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2872169/
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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