A Headache in the Pelvis Clinic

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HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: A Headache in the Pelvis Clinic

Post by HerMajesty »

Did you everyone get carted over to a PT clinic for the internal exams, or did they do those in the bathroom?
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Re: A Headache in the Pelvis Clinic

Post by ezer »

HerMajesty wrote:Did you everyone get carted over to a PT clinic for the internal exams, or did they do those in the bathroom?
There was a shack outside the main class room. It is where Tim Sawyer would see us.
When I did it the class it was 4.5 days as there were a few 1/2 days in the middle. It was roughly $115/hour for group instruction in relaxation (7 years ago).
PT was billed separately at $150 per session (which was higher than Tim's private rate at his own practice).
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: A Headache in the Pelvis Clinic

Post by HerMajesty »

OK, I stand corrected. Not the bathroom, the outhouse.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: A Headache in the Pelvis Clinic

Post by Karyn »

Why did you have to go to a separate location, i.e. shack for PT?
Warm, gentle, comforting hugs to all of you who attended this "clinic",
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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ezer
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Joined: Sun Sep 19, 2010 6:53 am

Re: A Headache in the Pelvis Clinic

Post by ezer »

Karyn,

There is a tragic element behind it. Everything that surrounds the Wise protocol has been carefully constructed to project a well crafted image of professionalism.
When I started looking for answers, I found the PN sites that were quite messy, fights were frequent etc... I then found David Wise's forum. It was a completely different story. It seems that everybody was getting better slowly. Then it was backed by Stanford. What a fantastic endorsement. David Wise assured me on the phone that PNE did not exist. That was what I wanted to hear of course. The Stanford name was used constantly. Little did we realize then that it was a very shrewdly crafted image. I since discovered that the Stanford link that was exploited so heavily was in fact very weak and currently nobody at Stanford knows anything about David Wise and his protocol.
Initially I thought the class was at Stanford. It is only at the last minute that I discovered that the class was 80 miles away in Sonoma county.
The class 6 years ago was held in David Wise's one bedroom house. If I remember correctly, it was a small log cabin. A bunch of small sheds surrounded the house. One was for David Wise's admin, the second one was David Wise's office (he would rush back to his office at every break as he clearly had no interest in mingling with us), and the third one was used by Tim Sawyer for PT. We got PT once a day according to a schedule we received.
The sad part is that spouses were encouraged to come and learn to do PT. Most patients came with their spouse. As expected most people did not improve and many patients started blaming their spouse for their lack of progress. How come everybody on David Wise's forum and on Amazon is getting cured? It was of course the husband's or wife's fault. There were 2 divorces that I am aware of in my group.
Last edited by ezer on Wed Feb 16, 2011 8:11 pm, edited 1 time in total.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: A Headache in the Pelvis Clinic

Post by Karyn »

Thank you for your response, Ezer. What a sad story, indeed. I'm finding it difficult to believe this "clinic" is still in business. Maybe because the focus is on chronic pain patients and they just don't have enough fight left in them to fully expose this operation? Could you please remind me what Mr. Wise's PHD is in?
If I remember correctly, he's not an actual medical doctor? Physchologist maybe?
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: A Headache in the Pelvis Clinic

Post by HerMajesty »

That is so sad about the divorces; the financial pressure is tremendous on couples when there is a medical problem and of course finances are a big piece of many divorces. This is I am sure the reason the "clinic" is still open as well... you don't need to fool too many people at 6 grand a pop. A lot of you guys that went seem to know each other; has anyone ever looked into a class action lawsuit?
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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Charlie
Posts: 214
Joined: Fri Sep 17, 2010 11:48 pm

Re: A Headache in the Pelvis Clinic

Post by Charlie »

I also went to the clinic when it was held at David Wise's home. You could not make it up really. How many other Dr's mentioned on this website run their clinics from their own home?

Stanford have never had any involvement in the running of the Wise clinic. It was Dr Rodney Anderson who was a Stanford Dr and co author of the book who was referring people to the clinic. Last year Stanford Urology department informed me on the phone that Dr Anderson has retired from Stanford.

Wise has admitted that his program was never officially called the Stanford Protocol in an article he wrote some years ago. I have quoted him below.
The Stanford Protocol is a name that was given by an internet support/chat group of patients suffering from different varieties of pelvic pain to a protocol originally called the Wise Anderson Protocol.
What he does n't tell you is that he was at that time sponsoring the website that called it that. The same website also continually referred to the clinic as the 'Stanford' clinic. As Ezer said it is a shrewd marketing campaign. Wise knows his audience , people in pain and when your in pain your willing to believe in anything. Now of course he has this 'blink and you'll miss it' disclaimer on his website.

Image

I hear that until 2008 the A headache in the Pelvis Clinic continued to be held at Wise's home. The photo I posted is fairly recent. Both the trigger point map and the photo may I add are entirely accurate.

Now David Wise has decided to upgrade to a hotel - The Flamingo.
Last edited by Charlie on Sun Mar 27, 2011 4:06 pm, edited 3 times in total.
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: A Headache in the Pelvis Clinic

Post by Karyn »

Do you happen to know what Wise's Phd is in?

Warmest of regards,

Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
User avatar
Charlie
Posts: 214
Joined: Fri Sep 17, 2010 11:48 pm

Re: A Headache in the Pelvis Clinic

Post by Charlie »

Karyn wrote: Could you please remind me what Mr. Wise's PHD is in?
If I remember correctly, he's not an actual medical doctor? Physchologist maybe?
Karyn, David Wise has no medical training or qualifications. He is a licensed psychologist.

However he has never been a Stanford psychologist as I was led to believe he was at his clinic. He has not been a member of Stanford Psychology department or their Urology department. In addition he is not a Doctor of Psychology. He is a doctor of Sociology. His Ph.D is below.

University of California, Berkeley
Department of Sociology
David Thomas Wise
Entering Cohort: 1967
Dissertation: Dharma West: A Social-Psychological Inquiry into Zen in San Francisco

Below is David Wise's convoluted explanation for the title of his protocol.

Image
Last edited by Charlie on Sun May 08, 2011 2:15 am, edited 1 time in total.
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
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