Hello
I have been dealing with peripheral neuropathy throut my body for more than three years. Two years ago I developed pudendal neuralgia. ( buring, pain while sitting, feeling of golf ball in rectum, pgad, feels as tho I have to always urinate, etc) I have been to so many drs I have lost count. I now know that the two are connected, altho no one knows why or how to treat the pudenal neuralgia. I have been on gabapentin for two years and even at 1800mg a day I still have flare ups. I was on 50mg of elavil for almost a year, but I gained 30 lbs. I am searching for a dr that can put two and two together. The neurologists are able to prescribe the gabapentin for the peripheral neuropathy, but are a complete loss regarding the pudendal neuralgia. The gynecologists I have been to havent even heard of Pudendal neuralgia. I have been to rheumatologists as well , who feel there is an autoimmune element to all of this,but other than the gabapentin they dont know what to do.
I live 45 mts from NYC so you would think I would have access to the best medical minds. So far I havent. If anyone knows of a urogynocologist, gynocologist, neurologist or pain dr that can help me I would be so greatful.
Thnx
Helene
peripheral neuropathy
Re: peripheral neuropathy
Helene, if you go to the homepage at pudendalhope.org and click on the list of physicians on the left-hand menu you can find the ones who are in New York. Dr. Deborah Coady has excellent knowledge of pudendal neuralgia and is very compassionate. You may also want to look at the list of PT's. There are some good ones in the NY area.
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.