More Adhesion after PN Surgery

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Designer1985
Posts: 6
Joined: Fri Jun 29, 2012 10:21 am

More Adhesion after PN Surgery

Post by Designer1985 »

I am one year post op from right side PN surgery. At six months post op I began to have 10+ right side rectal pain that radiates the length of the pudendal nerve, back of the right and left sides of the thigh with the sciatic nerve with each bowel movement. I can start off the day at low pain levels, but after bowel movement I'm toast. I had a 3T MRN that confirms adhesion at the sacral area and after Alcock's canal. I still have pain in the inner leg near the perineum more than before PN surgery. The surgeon used sepra film to help to minimize the adhesion formation, but this did not help or contributed to more adhesion. Has anyone had this complication? If so could you please respond to your experiences and what did you do about it? I am very distraught with this complication.

Rivahgal
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: More Adhesion after PN Surgery

Post by nyt »

There will always be adhesions after surgery, that is what the body does. The problem with any MRN or MRI after surgery is they will most likely see scar tissue but there is no way to know whether that scar tissue is entrapping the nerve. It is possible that the is re-entrapped but I be careful jumping to conclusions that you are re-entrapped based on the MRI or MRN. It might be that maybe the full nerve was not decompressed since they can't get to the branches from the transgluteal approach. Also, many of us have pelvic floor muscle dysfunction that contributes to our problems.

With the sciatic nerve involvement has anyone checked you for piriformis syndrome. It is a very common problem with those of us with PN.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Violet M
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Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: More Adhesion after PN Surgery

Post by Violet M »

Rivahgal,

Sometime between 9 months and a year after surgery I did some pelvic floor PT and used a TENS unit that helped a lot to get things calmed down. I could not tolerate these before surgery but they were helpful after. Have you tried anything similar?

Some people have found electroshock wave therapy with Kirk Andrew in Canada to be helpful. If you are prone to adhesions this might be a possible therapy to try rather than another surgery that could cause even more adhesions. Might be worth checking into at least.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
bma
Posts: 24
Joined: Sun Aug 25, 2013 5:26 pm

Re: More Adhesion after PN Surgery

Post by bma »

The idea of surgery does not appeal to me ... Looking at the documentation I found success rates between 60% and 85%. But do not believe them. Seem propaganda. I believe in a study of Pubmed: 50/50. And of these 50, we still have those which improve only slightly. Surgery is indicated when the person know you have a trapped nerve and that after release it will have significant pain reduction.
- Blocking done by Dr. Luciano Braun, Brazil
- bLock in piriformis - no response
- Physiotherapy, good response, 50%
- Therapy with low lidocaine infusion, good response .30%
- Surgery? Perhaps. But I'm incredulous.
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