I've already posted about this somewhere else but hoping someone will answer here...
I have a large swelling at the base of my spine in the sacrum area. It can clearly be seen and felt. It is not very soft like it is all water it is almost like the bone has moved! But there is definatelysome liquid too.
I had a an MRI and bone marrow oedema was shown in the sacrum and si joint but surely this wouldn't cause such a large visible lump.
It is very very sore all the time unlike the coccyx nerve pain which is on sitting only.
Help.... Please
Strange swelling
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GraceOfGod
- Posts: 10
- Joined: Fri Mar 22, 2013 8:41 pm
Re: Strange swelling
Chrissy--
I'm sorry to hear you are suffering.
Try googling
Back mouse
That's what it sounds like to me.
Hope you find relief.
Chris
I'm sorry to hear you are suffering.
Try googling
Back mouse
That's what it sounds like to me.
Hope you find relief.
Chris
Re: Strange swelling
I don't think its a back mouse because it is a hat dish lump that can't be moved with some swelling on top just feels like the whole sacrum is out of position but obviously isn't as I have had an MRI. I am so confused. Thanks for answering
Re: Strange swelling
Hi Chrissy,
I have that same sacral swelling. For me, it turned out to be Tarlov Cyst Disease. Did you have that ruled out during your last imaging?
Sometimes a radiologist will report it, but more often than not they won't, unless you specifically ask. What is your physician's comment about the bone marrow edema?
I hope this helps ...
Kind regards,
Karyn
I have that same sacral swelling. For me, it turned out to be Tarlov Cyst Disease. Did you have that ruled out during your last imaging?
Sometimes a radiologist will report it, but more often than not they won't, unless you specifically ask. What is your physician's comment about the bone marrow edema?
I hope this helps ...
Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Strange swelling
Oh thanks I wonder... So do you have pn as well as the cysts?
Re: Strange swelling
Yes, my cysts are located at S3, and are impinging on the surrounding sacral nerves. I no longer have PNE, but still have PN.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.