Need a PN aware Physio

Treatment options for UK & Irish members; including VHI & HSE criteria for funding and E112 Applications etc.
chrissy
Posts: 110
Joined: Wed Oct 09, 2013 8:57 pm

Need a PN aware Physio

Post by chrissy »

Please can anyone recommend a PN aware Physio in the UK especially in the North? The list only has one in Scotland and one in Ireland!
Rosemary
Posts: 309
Joined: Mon Dec 31, 2012 5:40 pm

Re: Need a PN aware Physio

Post by Rosemary »

It may be worth just contacting Maeve Whelan in Ireland Chrissy.
I rang her and was given the name of Ruth Jones - who i am afraid is in the South. I have read though that Maeve Whelan trains other people to be PN aware so there may well be someone in the North now.
The phone call to Ireland did cost a bit more than usual uk - there are her phone numbers with websites given under the Irelands PTs listed on here.
Rosemary x
chrissy
Posts: 110
Joined: Wed Oct 09, 2013 8:57 pm

Re: Need a PN aware Physio

Post by chrissy »

Thank you I have made an appointment to see Dr Jones, only a 5 hour journey (eek)!
Geraldine
Posts: 32
Joined: Sat Mar 17, 2012 1:31 pm

Re: Need a PN aware Physio

Post by Geraldine »

I have been seeing Ruth for a few months now and just thought you might find the following points helpful. Make sure you are quite clear what it is you need Ruth to know about your pain problem before your appointment. Take notes with you, many medical appointments have taught me that makes sure I say every thing whilst at the appointment. At my first appointment quite a bit of time was spent discussing with Ruth my pain issues, then a thorough physical examination and range of tests. At the end I had some physio treatment. In subsequent appointments I have had more physio and less talking. I am still finding the sessions both physically and mentally exhausting and I invariably fall asleep on the way home. Luckily my husband is able to drive me to see Ruth, so I hope you will not be driving yourself. I know some of Ruth's patients travel by train and have a taxi to where she practices.Good luck with your appointment.
chrissy
Posts: 110
Joined: Wed Oct 09, 2013 8:57 pm

Re: Need a PN aware Physio

Post by chrissy »

Geraldine, thanks for replying. My husband is driving me and as it's at least 5 hours I will have a nice long sleep on the way back!
I am sending through scan reports, pain scale, and brief medical history.
When I spoke to Ruth on the phone she was so lovely to me and seemed to really want to help but more reassuring was that she seemed very knowledgable. But we will see how it goes next week. I will update everyone.
Chrissy x
chrissy
Posts: 110
Joined: Wed Oct 09, 2013 8:57 pm

Re: Need a PN aware Physio

Post by chrissy »

Just wanted to add to this thread that I have seen Ruth Jones and she is excellent and she believes that I can make a recovery by doing Physio and trigger point release which she has even taught my husband to do on me. Would recommend to anyone in the uk
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: Need a PN aware Physio

Post by janetm2 »

Chrissy,
Glad to hear the update, finding someone in the know is a relief and btter yet that can get to recovery. My PT taught my husband a way to reset my alignment and connective tissue release, both can keep me in better shape. I hope it can give you quick and lasting relief.
Janet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
Positivepoppy
Posts: 174
Joined: Mon Feb 24, 2014 2:49 am
Location: uk

Re: Need a PN aware Physio

Post by Positivepoppy »

Hi Geraldine and Chrissy really glad PT seems to be having a positive effect. Are there any tips or advice you could offer as I have my first session next week but sadly the PT has not treated PNE before but seems willing and able to embark on this journey with me?
Just wondered if anyone has seen a PNE specialist in Wales in the UK recently, have spent hours researching but to no avail.
Hope you continue to make steady progress and to janets husband aswell
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Violet M
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Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: Need a PN aware Physio

Post by Violet M »

You could contact Maeve Whelan in Dublin to see if she knows anyone in your area who has taken her seminar on treating patients with PN pain. I believe she keeps a list of people who have. You can find Maeve's contact info at the bottom of this page: http://www.pudendalhope.info/node/60

Best,

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Positivepoppy
Posts: 174
Joined: Mon Feb 24, 2014 2:49 am
Location: uk

Re: Need a PN aware Physio

Post by Positivepoppy »

Thanks will ring tom violet at a more sociable hour
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