New Here

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
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ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Re: New Here

Post by ezer »

Sarajoy, congratulation on your progress and the realization that there is a mind body connection that causes your pelvic pain and that cannot be addressed by a scalpel.
I would like to warn you however that addressing pelvic pain only from the stress angle as advocated by David Wise's "headache in the pelvis" book and associated costly clinic is insufficient.
I did it that way initially and made mediocre progress. I never managed to heal following that methodology.
While stress is a triggering and aggravating factor, it is rarely the root cause of pelvic pain. It is unfortunately a bit more complicated than that. The real culprit is unresolved and repressed negative emotions that you need to address and neutralize.
The good news is that you can return to a completely pain free life. I am cured.

The following video is a good example. On the surface, Dr. Eric Robins, a urologist and surgeon, suffered from back pain because of the stress generated by his new job as a young doctor. But digging more into it, it was not the stress but negative emotions around the relationship with his wife and fear of divorce that were the cause. All of it unconscious.
http://youtu.be/Au4QnLXvBIM
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
stephanies
Posts: 683
Joined: Mon Oct 25, 2010 3:07 am

Re: New Here

Post by stephanies »

Ezer,

Thank you for sharing that example. It really clarifies the difference between "stress" and emotions.

Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
Sarajoy
Posts: 33
Joined: Fri May 30, 2014 12:01 am

Re: New Here

Post by Sarajoy »

Hi Everyone, I am back with an update. I am going to keep posting until I consider myself "better," assuming I will see that day--which I hope I will. My hope is that someone will find some benefit in what I've been through and tried.

So, It's been about a month since I started trying my new regimen for getting better. I do stretches from Healing Pelvic Pain twice a day and take a hot baths at least once a day. I've also been actively checking to make sure I'm not tensing any muscles. I had a great run of feeling perfect for a few weeks, but have been having some "feelings" for the last two days. These are not pain, but abnormal sensations that are unpleasant. After a few days, the burning went away when I urinated and has not come back. I would say that all of the actual pain has been gone and not returned. But like I said....I do still have these weird tingling feelings sometimes...mostly after standing in one place for a while.

I also started seeing a psychiatrist, which I wish I could say was helpful, but I don't actually find it any more helpful than any of the other therapists I've seen. The person is sort of freudian, and I think maybe a CBT approach would be more helpful...I don't know. I have never found any therapist any more insightful than I am about myself.

I read up on John Sarno, and while I would love to believe that all of these feelings are just unexpressed emotions, I am not a person who represses her emotions. On the contrary, I am TOO in touch with my emotions. I can get behind the idea that tensing muscles because of stress or anger or whatever creates and/or exacerbates pain, but I don't think that just recognizing that fact magically makes pain go away. I feel what Sarno says is a very slippery slope. When I have no pain and no weird feelings, I have little anxiety and can easily handle my emotional stress. The pain causes my anxiety and then makes it hard to handle emotional stressors. I can see how someone can get in a pain loop that is hard to get out of but I think Sarno is one step too far....for myself.

Anyway, I am feeling more positive than before and feeling like I have tools I can use when I get scared. I feel like I've made a lot of progress and hope the "weird" feelings will go away soon!

I wish you all healing!!!!!!
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Violet M
Posts: 6651
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: New Here

Post by Violet M »

Hi Sarajoy,

Thanks for the update. I can relate to a lot of what you are saying and I think it's great that you are being proactive about your treatment. I hope you will continue to see improvements and heal over time. It's hard to be patient though.

Take care,

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Re: New Here

Post by ezer »

Sarajoy, there is more than one path to mindbody healing. No matter what, it is wonderful and I wish you a full recovery like I have experienced.
Just a precision however. When I mention emotions, those are not the ones we are feeling. They are the emotions that we are repressing from our consciousness. We have no idea what they are, we can only try to guess. We can be aware of many emotions vividly but at the same time we can do a great job at repressing our fear of aging or fear of abandonment (for example). For example we get upset to automatically and unconsciously repress emotions we do not want to feel.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
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