Yeah, the PN specialist, only one here that I can find, won't do the test, says it's muscle spasms and that I'm perceiving things wrong!
Anyway, I just saw the uro-gyno again, and am going to do some injections possibly on Monday after another evaluation. But he told me I have developed chemical hypersensitivity due to my CNS being so revved up, and that's the biggest problem. Actually, I've had hip pain for 20 years, but never tore anything before or had this level of muscle involvement. Apparently this med can cause this reaction; I was only on it a few months for sleep. I hate meds, I usually never take them. And now I apparently can't take any of them....lol.
Do you have central sensitization?
Re: Do you have central sensitization?
Pain starting at ischial tuberosity 2013 (minor hamstring tendon tear); labral tear July 2013, referred pain to groin/bladder. Sept. 24th '13, tore my abdominal muscles and adductors at the pelvis; pain and spasms so bad I couldn't stand, walk, or go to the bathroom; misdiagnosed until Jan. 27th 14; double procedure 4/3/14, hip arthroscopy & muscle repair. One adductor still driving me nuts. Slowly working my way back to health & working to educate more about pelvic injuries/pathologies.
Re: Do you have central sensitization?
Based on everything I have read on CS I don't think there is a clear diagnosis -- has anyone experienced otherwise. this is a very new area of pain management and not a lot is known. I have many of the symptoms listed and yet none of the pain management doctors I have gone to think I have CS. it really does make a difference between which treatments you chose. I got a pudendal nerve block that sent me into a flare that I haven't recovered from and it was six months ago - I think it was just too painful. Understanding CS has helped me figure out what went wrong. Now I am focused on just relaxing and trying to get better.
prolonged sitting summer -- Vulvar Burning, Vulvadynia, Urinary Frequency, Lower Back Pain, Numbness in Foot, Pain when sitting, Hip Pain
1/12 90% Better after Pelvic Floor PT and 10 mg of Elavil
3/12 Potter MRI
4/12 MRI showed Labral Tears in both hips
4/12 Hip Injection with Dr Jordon -- some improvement
7/12 FAI and Labral repair Hip Surgery, Dr Coleman, HSS, 10/12-3/13 99% better!
3/13 Flared - present,
7/14 Ilioinguinal nerve block positive
1/12 90% Better after Pelvic Floor PT and 10 mg of Elavil
3/12 Potter MRI
4/12 MRI showed Labral Tears in both hips
4/12 Hip Injection with Dr Jordon -- some improvement
7/12 FAI and Labral repair Hip Surgery, Dr Coleman, HSS, 10/12-3/13 99% better!
3/13 Flared - present,
7/14 Ilioinguinal nerve block positive
Re: Do you have central sensitization?
Hi
I have Pudendal neurology for a year now since I gave birth to my first child.
It only get worse every day and on the last 8 months I have peripheral neuropathy as well. All of my skin from the belly botton and down is burning and I have eletrick shoks in my body.Before I started to take Lyrica my skin didn't burn and my feet didnt burn. I saw you said something about meds that could have this kind of effect - What meds can have an effect of neropathy like that? What do you mean?
Thanks!
I have Pudendal neurology for a year now since I gave birth to my first child.
It only get worse every day and on the last 8 months I have peripheral neuropathy as well. All of my skin from the belly botton and down is burning and I have eletrick shoks in my body.Before I started to take Lyrica my skin didn't burn and my feet didnt burn. I saw you said something about meds that could have this kind of effect - What meds can have an effect of neropathy like that? What do you mean?
Thanks!
Re: Do you have central sensitization?
Sharona, Lyrica could be causing some of the symptoms you are now describing. Below is a link to Lyrica side effects, scroll down to more "common side effects" and you will see what you are describing.
http://www.drugs.com/sfx/lyrica-side-effects.html
It is certainly worth a discussion with your prescribing physician.
http://www.drugs.com/sfx/lyrica-side-effects.html
It is certainly worth a discussion with your prescribing physician.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: Do you have central sensitization?
Hi all
Sometimes I think this is what I have. CS. I saw dr. Goldstein? in NYC (not Washington) He was not able to help me at all and made some suggestions that my problem is perception and that I was a bit of a mystery to him. Not a fun few days. He didn't think botox would help me... etc. He suggested I get a pudendal block with Dr. Chapman but I opted to start with a tailbone block which did nothing and then my spirits sank and fear set in. Chapman's office is a bit of a madhouse too with so many patients (I guess this means he's good - but for my mental state it just added to my inability to cope) which made it that I didn't want to go back there for something as scary and possibly life-altering as a pudendal nerve block. I don't know... I just didn't feel at ease. There was a lady next to me behind a curtain saying something like 'I don't feel like anyone's hearing me!' and my nerves just went through the roof. ( I came on here today to edit this by adding that this woman was not speaking to Dr. Chapman himself when she said she felt she wasn't being heard... she was talking to one of the half dozen other people you talk to before seeing Chapman. Also the day I went they were all ordering lunch and paying for take-out... so again, just craziness. Everyone's gotta eat but it just felt like the focus was not on me and when I'm about to have a nerve block I want the focus ALL on me) It's hard to explain. He was nice; they were nice, I just left there not feeling like I could handle going back for the block. It was just too busy and sort of frantic with so many nurses and staffers mulling around.
Anyway, I had posted that Seroquel helped my vag burning pain (nothing else really ever has accept Wellbutrin a tiny little bit) so obviously meds that work on the brain somehow help me. Perhaps someone with CS could look into that as a possibility? Ask your doc what he thinks about it maybe?
I also find that the less I do, most times, the better. I went through a period of depression that led to very little activity and I felt better in that time pain wise then when I'm up and at 'em as they say. That being said, I'm not sure how much limiting upsetment to the body will really help get me to a place of no pain. I've tried it and it avoids catastrophe I guess but it's not an effective answer so far. This is all such a mystery. It's really too much!
L
p.s. meditation is just something I can't do. My body is just too alive with sensations. Tinnitus too so it's quite hard for me. I give credit to anyone who can master it! I feel like it's definitely a good idea I just can't do it myself.
Sometimes I think this is what I have. CS. I saw dr. Goldstein? in NYC (not Washington) He was not able to help me at all and made some suggestions that my problem is perception and that I was a bit of a mystery to him. Not a fun few days. He didn't think botox would help me... etc. He suggested I get a pudendal block with Dr. Chapman but I opted to start with a tailbone block which did nothing and then my spirits sank and fear set in. Chapman's office is a bit of a madhouse too with so many patients (I guess this means he's good - but for my mental state it just added to my inability to cope) which made it that I didn't want to go back there for something as scary and possibly life-altering as a pudendal nerve block. I don't know... I just didn't feel at ease. There was a lady next to me behind a curtain saying something like 'I don't feel like anyone's hearing me!' and my nerves just went through the roof. ( I came on here today to edit this by adding that this woman was not speaking to Dr. Chapman himself when she said she felt she wasn't being heard... she was talking to one of the half dozen other people you talk to before seeing Chapman. Also the day I went they were all ordering lunch and paying for take-out... so again, just craziness. Everyone's gotta eat but it just felt like the focus was not on me and when I'm about to have a nerve block I want the focus ALL on me) It's hard to explain. He was nice; they were nice, I just left there not feeling like I could handle going back for the block. It was just too busy and sort of frantic with so many nurses and staffers mulling around.
Anyway, I had posted that Seroquel helped my vag burning pain (nothing else really ever has accept Wellbutrin a tiny little bit) so obviously meds that work on the brain somehow help me. Perhaps someone with CS could look into that as a possibility? Ask your doc what he thinks about it maybe?
I also find that the less I do, most times, the better. I went through a period of depression that led to very little activity and I felt better in that time pain wise then when I'm up and at 'em as they say. That being said, I'm not sure how much limiting upsetment to the body will really help get me to a place of no pain. I've tried it and it avoids catastrophe I guess but it's not an effective answer so far. This is all such a mystery. It's really too much!
L
p.s. meditation is just something I can't do. My body is just too alive with sensations. Tinnitus too so it's quite hard for me. I give credit to anyone who can master it! I feel like it's definitely a good idea I just can't do it myself.