I would like to share this poem that I read on a different forum.
Today is another day I have to deal with the pain
To take my medication that makes me feel insane
I have to live with this and it won’t go away
So please don’t get angry if today’s a bad day
The side effects of my tablets make me feel very low
Most days I cant be as happy or always be on the go
Please try to understand that I might look ok to you
But trust me I’m in pain and I can’t do the things you do
I know I can get depressed, feel down or have a moan
But I’m still the same person that you have always known
I just want to say sorry for the times I’ve snapped at you
I know it’s difficult to understand just what I’m going through
Don’t be upset if I don’t feel like it or can’t do it your way
Tomorrow might be different as the pain varies day to day
When the pain and medication makes me feel depressed
Just remember I have to live with this so I’m doing my best.
I have to drive 30 miles to work, which I find hard to do
The tablets make me tired & can’t concentrate too
It’s exhausting and difficult to make it through the day
I wish I could give up work but I have many bills to pay
Poem to explain our pain
Poem to explain our pain
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Poem to explain our pain
Don't allow me to forget, living life to the full.
It's not that I won't but can't now. Hate being this 'dull'.
Anyone else want to keep Amanda's poem going?
It's not that I won't but can't now. Hate being this 'dull'.
Anyone else want to keep Amanda's poem going?
Last edited by helenlegs 11 on Mon May 06, 2013 12:48 am, edited 1 time in total.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Poem to explain our pain
Thanks Helen for your addition to this great poem.
I used to write poems all the time and still refer to my book......wow they told some sad tales along the way!
I have promised myself to get writing again but in a more positive way, my MIL had a huge collection of poetry books which i have borrowed and have promised myself to read and learn by. She took an English Lit Masters degree at age 58 so as I am now 50 I think its time I began to look into the more intellectual side of my personna before i kick the bucket!
I used to write poems all the time and still refer to my book......wow they told some sad tales along the way!
I have promised myself to get writing again but in a more positive way, my MIL had a huge collection of poetry books which i have borrowed and have promised myself to read and learn by. She took an English Lit Masters degree at age 58 so as I am now 50 I think its time I began to look into the more intellectual side of my personna before i kick the bucket!
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Re: Poem to explain our pain
Today is another day I have to deal with the pain
To take my medication that makes me feel insane
I have to live with this and it won’t go away
So please don’t get angry if today’s a bad day
The side effects of my tablets make me feel very low
Most days I cant be as happy or always be on the go
Please try to understand that I might look ok to you
But trust me I’m in pain and I can’t do the things you do
I know I can get depressed, feel down or have a moan
But I’m still the same person that you have always known
I just want to say sorry for the times I’ve snapped at you
I know it’s difficult to understand just what I’m going through
Don’t be upset if I don’t feel like it or can’t do it your way
Tomorrow might be different as the pain varies day to day
When the pain and medication makes me feel depressed
Just remember I have to live with this so I’m doing my best.
I have to drive 30 miles to work, which I find hard to do
The tablets make me tired & can’t concentrate too
It’s exhausting and difficult to make it through the day
I wish I could give up work but I have many bills to pay
Don't allow me to forget, living life to the full.
It's not that I won't but can't now. Hate being this 'dull'.
To take my medication that makes me feel insane
I have to live with this and it won’t go away
So please don’t get angry if today’s a bad day
The side effects of my tablets make me feel very low
Most days I cant be as happy or always be on the go
Please try to understand that I might look ok to you
But trust me I’m in pain and I can’t do the things you do
I know I can get depressed, feel down or have a moan
But I’m still the same person that you have always known
I just want to say sorry for the times I’ve snapped at you
I know it’s difficult to understand just what I’m going through
Don’t be upset if I don’t feel like it or can’t do it your way
Tomorrow might be different as the pain varies day to day
When the pain and medication makes me feel depressed
Just remember I have to live with this so I’m doing my best.
I have to drive 30 miles to work, which I find hard to do
The tablets make me tired & can’t concentrate too
It’s exhausting and difficult to make it through the day
I wish I could give up work but I have many bills to pay
Don't allow me to forget, living life to the full.
It's not that I won't but can't now. Hate being this 'dull'.
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Re: Poem to explain our pain
Hi Amanda that's a great poem!
At times We feel that our families don't Truly understand, And hopefully reading this this could help.
For the last line last of your poem ..How about adding
Maybe I can't now but I know someday I will!
Thanks for writing this !
Kathy
At times We feel that our families don't Truly understand, And hopefully reading this this could help.
For the last line last of your poem ..How about adding
Maybe I can't now but I know someday I will!
Thanks for writing this !
Kathy
Re: Poem to explain our pain
Hi Amanda that's a great poem!
At times We feel that our families don't Truly understand, And hopefully reading this this could help.
For the last line last of your poem ..How about adding
Maybe I can't now but I know someday I will!
Thanks for writing this !
Kathy
At times We feel that our families don't Truly understand, And hopefully reading this this could help.
For the last line last of your poem ..How about adding
Maybe I can't now but I know someday I will!
Thanks for writing this !
Kathy