Hi everyone,
Further research of the Posterior Femoral Cutaneous Nerve led me to this article, discussing both this nerve and its perineal branch and the pudendal nerve.
http://thejns.org/doi/pdf/10.3171/2008.11.JNS081248
These two nerves appear to communicate and of particular interest to me is the course of the PBPFCN and my areas of pain. Most of my pain is again located in that dollar sized area, the ischial tuberosity, labium majus and the clitoris. The article suggests that "a portion of the penis/clitoris." may be supplied by the perineal branch of the PFCN and it describes in detail how my other areas are innervated by this nerve as well. This has given me a lot of food for thought, because I feel that this nerve can be implicated in my pain, and that via its communication with the pudendal nerve the problem has gotten much worse. One week and I guess Dr. Potter may be able to help identify what's going on in there.
Anyway, I hope someone finds these articles/pictures helpful or at the very least, if somebody attempts the drawing, a bit humorous
-Krista
Posterior Femoral Cutaneous Nerve
Posterior Femoral Cutaneous Nerve
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: Posterior Femoral Cutaneous Nerve
Krista, thanks for the great links. May explain the class of pudendal patients who don't get relief from surgery they really had posterior femoral cutaneous nerve entrapment instead or patients may have both. Will have to try the drawing exercise, I see why you had so much fun.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: Posterior Femoral Cutaneous Nerve
Thanks for posting that info, Krista! It was really helpful to me especially since I seem to be one of those people that has an awful hard time figuring out pictures of the pelvic anatomy. Interestingly, I also have a spot on my rear end that, when scratched, illicits a pulling sensation in the clitoris even though I typically don't have pain in that area and there is also no sexual disfunction there either...very strange! I go through long periods of been asymptomatic and even then, I can still cause that feeling my clitoris if I scratch that area although not consistently.
Before all this started 5 years ago, I didn't realize how complicated the human body was! I would love to go back to that ignorance! The drawing thing is interesting...might be an amusing way for the hubby and I to pass some time!!
Stephanie
Before all this started 5 years ago, I didn't realize how complicated the human body was! I would love to go back to that ignorance! The drawing thing is interesting...might be an amusing way for the hubby and I to pass some time!!
Stephanie
Re: Posterior Femoral Cutaneous Nerve
Great! I'm glad you are find the links useful.
Nyt- I think you might be right, after reading this article and a few others it does appear that this nerve may play a role in pelvic pain, if not directly, then possibly through communication with the pudendal nerve.
Stephanie- That IS interesting that you also can scratch an area and elicit the pulling sensation. If you do the drawing I'd love to know where that area falls in relation to some of the landmarks the drawing provides. You are right in saying that the the human body is complicated, I too never knew the extent until I started researching stuff as it relates to the pelvis.
Nyt- I think you might be right, after reading this article and a few others it does appear that this nerve may play a role in pelvic pain, if not directly, then possibly through communication with the pudendal nerve.
Stephanie- That IS interesting that you also can scratch an area and elicit the pulling sensation. If you do the drawing I'd love to know where that area falls in relation to some of the landmarks the drawing provides. You are right in saying that the the human body is complicated, I too never knew the extent until I started researching stuff as it relates to the pelvis.
Pain started suddenly April 2010.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
3T MRI w/ Dr. Potter, January 2011 shows bilateral impingement of the dorsal nerve of the clitoris.
Unsure what to do next because my pelvis is a mess.
Re: Posterior Femoral Cutaneous Nerve
It is a truly bizarre symptom and I do find it strange that it can happen even if I have no other pelvic pain (my symptoms remit and relapse). I really wish I could be one of those people that gets to live in ignorant bliss about pelvic pain!
I'm planning on getting the hubby to do the drawing once I go shopping on the weekend and pick up a washable marker (never thought I would be buying a marker for this purpose!). I feel so bad for my hubby though...I'm sure he is massively sick of looking at my behind (and hearing about it) at this point...not that he ever complains but getting him to draw on my bum might inject a little humor into this ordeal! You know what they say: "if you don't laugh you cry". I'll report back on exactly where the spot is!
I'm planning on getting the hubby to do the drawing once I go shopping on the weekend and pick up a washable marker (never thought I would be buying a marker for this purpose!). I feel so bad for my hubby though...I'm sure he is massively sick of looking at my behind (and hearing about it) at this point...not that he ever complains but getting him to draw on my bum might inject a little humor into this ordeal! You know what they say: "if you don't laugh you cry". I'll report back on exactly where the spot is!
Re: Posterior Femoral Cutaneous Nerve
Krist and others, when I was in PT with Rhonda K- she endlessly talked about the PCFN as a likely culprit.
Cora
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
Re: Posterior Femoral Cutaneous Nerve
Krista,
Have you found out the results of your MRI yet? I would like to know if there is only one physician in the U.S. who can read a 3T MRI when it concerns the pudendal nerve? I live near Denver, and there are a couple of places that have a 3T MRI. The radiologist at one place said he would be willing to try doing an MRI for that purpose, even though it would be complicated with the hardware in my back. Does it take special training to read a MRI for pudendal nerve entrapment??? Thanks for any input.
Have you found out the results of your MRI yet? I would like to know if there is only one physician in the U.S. who can read a 3T MRI when it concerns the pudendal nerve? I live near Denver, and there are a couple of places that have a 3T MRI. The radiologist at one place said he would be willing to try doing an MRI for that purpose, even though it would be complicated with the hardware in my back. Does it take special training to read a MRI for pudendal nerve entrapment??? Thanks for any input.
Re: Posterior Femoral Cutaneous Nerve
Paulette,
When I called Dr. Potter's office asking them if I could just have a 3Tesla MRI in my area and ask Dr. Potter to read it, they said no... because it is not the machine, but the fact that she knows the right locations to take the images. So the images would not be taken in the right locations. I would hate for you to waste your chance on getting it with the wrong person. Perhaps you can get your 3Tesla operating person to get in touch with Dr. Potter and ask what images need to be taken specifically?
When I called Dr. Potter's office asking them if I could just have a 3Tesla MRI in my area and ask Dr. Potter to read it, they said no... because it is not the machine, but the fact that she knows the right locations to take the images. So the images would not be taken in the right locations. I would hate for you to waste your chance on getting it with the wrong person. Perhaps you can get your 3Tesla operating person to get in touch with Dr. Potter and ask what images need to be taken specifically?
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
Re: Posterior Femoral Cutaneous Nerve
Krista,
Thank you for replying. I think I will do what you suggested, as far as having the radiologist get in touch with Dr. Potter. This information needs to be disseminated! I feel bad for you. You are so young and have gone through so much. Keep us posted. Paulette
Thank you for replying. I think I will do what you suggested, as far as having the radiologist get in touch with Dr. Potter. This information needs to be disseminated! I feel bad for you. You are so young and have gone through so much. Keep us posted. Paulette