MRI and scarring

Discussion of magnetic resonance imaging and magnetic resonance neurography
Pelvis Stressly
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Joined: Fri Sep 17, 2010 3:56 pm
Location: Toronto

Re: MRI and scarring

Post by Pelvis Stressly »

AliPasha1 wrote:That's why most people become impotent after prostate cancer surgery and chemotherapy treatment.
That's different though Ali...in those cases there's a clear reason (necessary but intrusive surgery) for the nerve damage. Generally speaking though, for more 'naturally' occurring cases of entrapment/compression (ie. via normal life activities like cycling, weightlifting, childbirth, etc.), the pudendal nerve is relatively more exposed/at risk.
AliPasha1
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Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: MRI and scarring

Post by AliPasha1 »

Agreed.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Pelvis Stressly
Posts: 297
Joined: Fri Sep 17, 2010 3:56 pm
Location: Toronto

Re: MRI and scarring

Post by Pelvis Stressly »

On another note, I'm finally re-doing that pudendal angiography (this time with the intracavernous injection) tomorrow morning...will let you know how it goes.
Take care, PS.
AliPasha1
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Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: MRI and scarring

Post by AliPasha1 »

Good luck. :D
Give my Regards to Dr. Kim.


Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Pelvis Stressly
Posts: 297
Joined: Fri Sep 17, 2010 3:56 pm
Location: Toronto

Re: MRI and scarring

Post by Pelvis Stressly »

Thanks.
Not having it done in Boston though...going to an interventional radiologist here in Toronto.
scaredgal
Posts: 153
Joined: Tue Nov 30, 2010 3:24 pm

Re: MRI and scarring

Post by scaredgal »

I'd also be curious to find out about any chemical agent that can break up scar tissue - if an injectible (ie., something similar to Wydase) could be injected into the areas that are found to have scar tissue around the nerve, wouldn't that be preferable to surgery, since surgery can cause additional scar tissue? Wonder what type of doctor you would consult to have this done?
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A's Mommy
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Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
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Re: MRI and scarring

Post by A's Mommy »

I'm interested, too, in that chemical agent. Let me know if you find out anything.

PS: Good look with your repeat angiogram.

AM
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: MRI and scarring

Post by Karyn »

Best wishes with your angiogram, PS!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
RJR
Posts: 155
Joined: Mon Nov 15, 2010 11:26 pm
Location: Northern VA

Re: MRI and scarring

Post by RJR »

OL folks...my2 cents.

Having a brief conversation with Dr Potter may be worth much to separate the wheat (key findings) from the chaf (inconsequential scarring). She told me that my R STL was very deformed and contrasted greatly from my L STL.
RR

Potter MRI findings in Oct
-Right STL deformed and scarred and a dilated vein in posterior Alcock’s…”both compress the R Pudendal nerve”
-Mild scarring in the pelvic floor

Surgical Findings in Nov
-Area of most severe compression of Pudendal nerve at scarred Sacrotuberous ligament;
-Some narrowing at entrance of Alcock’s canal; Noted dilated vein in superior part of nerve…not ligated
Cyclist till perineal pain onset R side (Apr'08). Dx with PN (Aug'09). Lyrica gave 30% pain reduction. Potter MRI (Oct'10) validated at surgery with Dr Hibner (Nov'10) - found nerve attached to scarred STL. Now sitting 10 hrs/day vs 1 hr/day pre-op. Occasional MRI-guided steroid injections by Dr. Jan Fritz at Johns Hopkins. Surgery video = http://www.youtube.com/watch?v=6FDwana6SQU

Deep neuropathic burning pain flares have been gone since surgery...Grateful to Dr Hibner.
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: MRI and scarring

Post by AliPasha1 »

RJR,
I would say that her findings are 100% accurate.It's a matter of Medical wording which Radiologists use vs Surgeons Post Surgical Report.But this is the best accurate imaging reporting I have seen so far of the pudendal Nerve.Also,her analysis maybe be a little off ,but her accuracy of where the problems is quite accurate.

Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
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