3rd Post, questions, guidance, Violet

[Testudo]

Hi, I have been immersing myself in the HOPE site and other pudendal nerve sites for information. I have some clarification questions. I have read that if you are experiencing symptoms to “not delay diagnosis and treatment”. My symptoms starting about a month ago have been some periodic quick stings in the upper groin, some very periodic and temporary slight burning in the penis. Then some slight numbness in the genital area. My latest symptom is constipation, and I just started a Miralax normal regimen (a suggestion by the HOPE site). I am not having any particular pain sitting. I was thinking about starting PT as the HOPE site says is an excellent approach. I found a PT listed on the HOPE site within an hour from me. Question, the HOPE site says to “avoid Kegal exercises” in PT for PNE. Yet it’s complicated whether you have PNE or PN, and a there is lot written about PNE and PN regarding interchangeability and distinction? And I have no diagnosis of PN or PNE. This is a whole other matter. The closest PN/PNE doctors to me do not accept insurance. So in the meantime, can PT sans Kegal be an initial “treatment” for PNE? Or is PT only useful for those with PN? Thanks.

[Teddie b]

Hi Testudo, Sorry your in a bad way i had to go through a lot of doctors and a lot B S its all in your head talk before i found a Female Urologist who diagnosed me . I do not know were you are located but if you are in California THC was
incredibly effective at keeping pain levels at bay i used the gummies . I also had a Avizzia practitioner which is a biomedical device like a tens unit but a thousand percent better and not the same technology. I went to about a year of Pt before i was able to do a lot exercises but just keep up as much as you can do it does get better -cv [ Until you can get someone who really knows pelvic anatomy to correctly give you a diagnosis and a protocol that is all i have for you for now Be Well Teddie

[Violet M]

can PT sans Kegal be an initial “treatment” for PNE? Or is PT only useful for those with PN? Thanks.

The way I look at it is that since it can be difficult to determine whether you have PN or PNE, it is worth trying PT to see if it is going to help you. And trying PT might even be helpful in determining whether you have tight muscles, or a structural abnormality that can be corrected with PT; or whether you have an actual entrapment that can't be fixed just by doing PT. If you just have tight muscles, myofascial release can be very helpful to release tension in the muscles. But if you have a nerve compressed by ligaments, myofascial release can be very irritating to the nerve - at least it was for me.

Think of it as if you were having a back rub and how massaging the back muscles would be very relaxing, but if you have a compressed nerve coming from you spine, it could be very painful to have it massaged.

Some people feel that active release therapy (ART) can relieve a nerve entrapment - maybe even PNE. I don't know if there is any evidence or peer reviewed literature that confirms this. You can google to see what ART is. I don't know if any PT's trained to treat pudendal neuralgia use ART, but I know they do a lot of myofascial release.

Violet