Pudendal Nightmare

[RitaShirley]

2 years ago I was hospitalized for 2 weeks with groin pain so bad that I couldn't sit to even use the bathroom. 2 years later and numerous procedures, I'm still suffering uncontrollably. Feelings of hopelessness have entered my mind on several occasions. My pain has moved around a lot. I cant sit at all. Or if i do, I'm in excruciating pain. I've had 14 pudendal nerve blocks in 14 weeks in a row with ZERO results. Dr. is talking about putting a nerve stimulator in place before the end of the year. Has anyone had a positive experience with this procedure? When I have a bowel movement, I want to literally die. Has anyone had nerve blocks in S2, S3? If so, any relief? I seem to be caught between a Urologist saying for me to never have another nerve block. A OBGYN saying the next step is a nerve stimulator, A physical therapist saying it may be a good idea to have my S2, S3 blocked. My spine Doctor turned me over to a Pain specialist doctor who has given me every injection possible to man. My pain doctor turned me over to the OBGYN doctor. What the heck? Feeling like a pin cushion. What should i do next?

RLS

[stephanies]

I am sorry you are in so much pain. 14 nerve blocks in 14 weeks sounds like a lot to me. When you say you had zero results I assume that you didn’t even get brief relief, like for a few hours, after the blocks? If not, I wonder why your doctor kept doing them for so many weeks without a response. It sounds like now your doctor might think your pain is originating at the nerve root vs. the peripheral nerve. Have you had imaging to look at your sacrum/tailbone? If not, that would be important before trying a block there. If you have a Tarlov Cyst, for example, it could be punctured by the needle for the nerve root block and cause a CSF leak, if the doctors don’t know it is there. It is my understanding that nerve root blocks are more diagnostic than done for long term relief.

I hope you are able to find some answers.

Stephanies

[zakiul94]

Thanks for sharing wonderful post

[cztober]

I got a stimulator. It helps. See Dr Richard Marvel in Maryland. He is on the doctor page

[I dont know any more]

My pn nerve pain is always faliring and so bad that i got ticks and seazuers in amd off nearly all day.
Is my only option in my country how did it help for you?
I used to be a very active person.
Cant take og my self for the pain laying all day cant get up to get water before night. Can not eat as the teeth dont have controll.